[Geezer]

in reply to: Hypo and Hyper at the same time…sigh #1183185

My endo was firm about only using TSH levels but I got my regular Dr to prescribe T3.

[Geezer]

in reply to: How many have had proptosis reverse naturally? #1181202

Hi! I had noticeable eye problems and I don’t anymore. It is not back to normal, but it is much better.

[Geezer]

in reply to: For those living with extreme fatigue and cognitive impairment despite bloods being ‘within range’ #1177554

Kind of a postscript – I don’t have a problem with telling my truths on a forum. We all need help and sugarcoating facts is not always helpful. It can make those of us who struggle feel even more like a failure. Of course, stories of hope, when truthful, are needed also.

Talking about suicide and mental illness is also my way of spreading awareness and encouraging others to feel it is OK to open up. Statistically, some people with Graves do have depression, too, and it just makes it all even worse. (I do definitely know that not enough thyroid med gives you brain fog and extreme fatigue just by itself.)

Besides, my name really isn’t geezer – I just kinda feel like a geezer!

[Geezer]

in reply to: For those living with extreme fatigue and cognitive impairment despite bloods being ‘within range’ #1177553

Yes, my primary Dr tests my free T3 and gives me a cytomel prescription for it. Just being on Synthroid did not help much after my radioactive iodine treatment. T3 helps. I still have a lot of fatigue but I know that is due partly to my depression as it goes up and down on different depression meds. The actual leg tiredness I blame on Graves, and the lack of thigh muscle strength. It is really upsetting as I struggle just to go grocery shopping. Vitamin D helps a lot for the heavy leg feeling but doesn’t give me any more leg strength. Does anyone have any luck actually getting stronger?

[Geezer]

in reply to: For those living with extreme fatigue and cognitive impairment despite bloods being ‘within range’ #1177549

I am new to this forum but not to Graves. I too have dreadful fatigue. I had to fire my endo doc, and use my primary doc, when she wouldn’t even discuss free T3 levels. At that point with diabetes and depression too, I tried to kill myself. I am doing a bit better but I agree that getting fully better is hard to accomplish. I at least have a few minutes of energy sometimes! Of course, fatigue can definitely come just from not high enough freeT3.

I still have joint pain and lots of trouble with having a lack of leg muscles. Doesn’t Graves attack those? I seem to remember that.

I can’t walk far and I walk like I am 20 years older. Those suggestions to “just exercise” make me want to scream, too…if I had the energy to scream. I feel like I have done a race just to get my dishes washed or my toilet scrubbed. Waste precious energy exercizing???!!!

[Author]

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