[Gabe]

in reply to: No patience for meds. Thinking about insisting on TT #1177421

Thanks all, patience isn’t one of my virtues but now that I’ve made the decision and know there is light at the end of this tunnel I’ll push thru. Cut back my work hours and plan to work more from home and I’m blessed to have this option and an understanding employer.
Kimberly. My docs are checking all of my thyroid related labs but I can’t seem to remember what those numbers are….actually can’t remember much of anything!
My pre-op consult is June 5th with a promise that if labs dictate they will move it up. I’m nervous but convinced that I’m not the one to wait this out and do the medicine roller coaster. I know a lifetime of synthroid is in my future but my sister is managing her post RAI Graves very well after 5 years.
This forum is the best! All so sharing and caring…

[Gabe]

in reply to: No patience for meds. Thinking about insisting on TT #1177418

Visited family doc today since I am a mess with anxiety, rage, moods, swollen eyes, etc. Told her I did not want to wait until June to see endo for recheck and that based on my research, and this website/forum, I wanted the TT NOW.

She wants my TSH up a little higher before surgery (started at o.oo5 and then to 0.017). New labs next week. Got the referral to her best general surgeon so anxiously waiting for pre-op appt, which could be weeks away. But at least there is potential for relief.

I know that TT isn’t perfect and comes with risk and won’t necessarily be easy but it’s got to be better than all these meds and the mental symptoms. So what should I expect with TT? I’ll start by checking out the treatments options section of this forum…

Thanks to everyone…this forum is the last thing I read before bed each night…helps me to feel like I’m not totally crazy…

Karen

[Gabe]

in reply to: Introduction & A Question #1177487

Sue, I’m also new to Graves since January 2013. I was originally put on beta blocker for rapid heart rate. Endo doubled methimazole and stopped blocker. Within 1 week I felt a new strange and had similar symptoms to yours. Took my BP and was shocked! Called two docs. Finally got a refill of blocker and within a few days BP back to normal. I’m 54 and have never had high BP.

[Gabe]

in reply to: Those who have been on Methimazole – weight gain questions… #1177458

My experience: on 20mg Meth and 25mg beta daily for 6 weeks. No weight gain. Actually the hyperactivity caused me to lose some weight and the treatment to date hasn’t caused any gain, which I’m thinking could mean I’m still hyper. So while I want to get healthy I’m very scared of going hypo and gaining weight since I’m in menopause and its a weight-gaining time of life anyway! I know weight gain is probably inevitable. My sister is also Graves with RAI…she experienced very little weight gain and has been stable with little to no issues or adjustments for years. Hoping same happens for me.

[Gabe]

in reply to: No patience for meds. Thinking about insisting on TT #1177417

Very helpful Kimberly. I will definitely start tracking ALL labs vs just hormone. Thank you for all your dedication to helping others!

[Gabe]

in reply to: What Acronyms Do Our “Newbies” Need to Know? #1177454

Thanks for starting this thread. Navigating thru all the jargon is confusing for a newbie. Looking forward to learning more!

[Author]

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