Forum Replies Created

Viewing 2 posts - 1 through 2 (of 2 total)
  • Author
    Posts
  • fishstix
    Participant
    Post count: 3

    Shirley –

    Thank you for the information! I find it very helpful to hear about other people’s experiences. I’ve been to an ophthalmologist for two appointments now, one as an initial check, the next to review my MRI and recheck. Although he isn’t a neuro-ophthalmologist, he is familiar with Graves and did a thorough check of my double vision, my level of eye bulging (sorry long day, can’t remember the proper name of that measurement), color loss, etc. If the steroids don’t fix the issue they will send me to the neuro-ophthalmologist for next steps.

    I agree with you, double vision is a game changer. Based on your description and others on this site, my situation sounds very mild. During times of stress or when I’m tired, it’s quite bad. But I know that over the 10 months I’ve had it now I’ve adjusted to it as well.

    I’ve just completed infusion 2 of 12 and so far so good. The only side effects I’ve experienced is a metallic taste in my mouth and an upsurge in energy the night of infusion. The first week that translated into a sleepless night. This week I tried to work it off with a brisk long dog walk before bed which seemed to help.

    In regards to my screen name, it’s a nickname I picked up in college thanks to my softball teammates and a terrible mispronunciation of my last name. It stuck, and is now a handy handle for the Internet world. :-)

    fishstix
    Participant
    Post count: 3

    Thank you Kimberly, Liz and Laura for the information! It is all very helpful. I will be asking for a sleep aid as well. I am already having trouble sleeping due to other life issues, and last night after my first infusion was not a good night, so hopefully this helps. This disease is trying, but I feel lucky to have this community of support! Thanks for the good wishes and I wish you all the best as well!

Viewing 2 posts - 1 through 2 (of 2 total)