[EyesWideOpen]

in reply to: TED symptoms or no? #1174743

Thanks for your response. I’ve discussed with with my regular doctor, my endocrinologist, my optometrist, my opthamologist, etc. etc. Problem is nobody can say for sure what is causing the pressure. Original CT & MRIs from 2009 didn’t show anything abnormal with orbits. My opthamolgist is just now noticing a difference between the two eyes but it has been several years. It has been a long, slow process and it is only getting worse and the pressure has never gone away. Weird.

[EyesWideOpen]

in reply to: TED symptoms or no? #1174741

Thanks to Bobbi and gatorgirly for your responses. I continue to be amazed at how varied TED symptoms are person-to-person. I had proptosis years ago when first diagnosed with Graves’, but the methimazole took care of that so I no longer had “the look”….But the pressure, it’s really effecting how I blink and how I move my right eye around.

I can relate to gatorgirly when you talk about squinting to match up your eyes. Although you can no longer “see” the proptosis to look at me, the pressure is so strong that I feel like I have to squint to match my eyes up so they “feel” even to me. I know that sounds strange, believe me, it’s even harder to explain to a doctor. Ugh.

Thanks for sharing your experiences and words of encouragement.

[EyesWideOpen]

in reply to: TED symptoms or no? #1174738

Thanks Kimberly that was an interesting link. I also hope to hear from others about their personal experiences in particular if BOTH eyes were symptomatic or only one. Thanks…

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