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in reply to: Decisions, TT or RAI #1065875

Hi,
I finally did RAI, my first choice, after a long battle with this disease. You can read old posts from me and others who did RAI or TT around the time I did by looking for my posts with my sign in ewmb. There is lots of information here so read, read, read. Then you’ll be armed with information to make a choice that’s right for you.

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in reply to: Symptoms of too much replacement #1066338

Luckily I’ll be staying in a practice that has at least 10 endocrinologists. They are affiliated with a teaching hospital. I just need to ask him which ones deal with thyroid patients. I will see him one more time in May and my GP was the one who figured out my problem almost three years ago and we had already talked about him taking over when I was stable so I wouldn’t have to drive an hour and a half to get to the specialists. I agree that it’s important to get all labs. I have an excel spread sheet too of my labs over the years. I was able to use it once to point out a trend to my endo when he didn’t see it.

Thanks for the advice always good to share since some people would really be in a different pickle if their endo retired.

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in reply to: Symptoms of too much replacement #1066336

Finally talked to endo about tremors etc.. Decided to knock it back to 110mcg on three days a week and stay on 112 mcg four days a week without doing blood work. He also told me he’s retiring in a few months. Hope I get settled soon so that I don’t have to start all over with a new endo while I’m in transition.

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in reply to: My TSH will not go down #1065930

I’m 7 months out from RAI and have the same thing. My last TSH finally moved to 14. something. I think I am slow on getting my TSH to catch up. I am waiting 8 weeks this time to get blood drawn.

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in reply to: Fibromyalgia and Graves #1065954

I do try to stretch every day. Not always right before or after my "exercise". With my fibromyalgia I find that the stretching helps keep me moving but doesn’t always feel good. I am still going through so much pain in my muscles especially my large ones that it’s hard to keep moving some days. It took me several years to get in shape after I was diagnosed with fibromyalgia so I think if it is acting up now it will take me longer since my TSH is still off. Maybe getting that in check will really help. It is a catch 22 situation, need to move to feel better- don’t really feel like moving since I don’t feel well. Can’t lose weight because I can’t move enough- harder to move because I’m overweight. The really skinny days of hyper weren’t good either.

Just cutting back on calories isn’t enough for me right now it seems. My weight seems to be gathering in my hips and my thighs. Every woman’s dream I know that it’s healthier than having it around my heart so I am glad of that right now. Trying to find the sliver of a silver lining in anything.

Hope the spring weather is good where ever you are reading this. The sunshine is good medicine.

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in reply to: Symptoms of too much replacement #1066335

enough3,
Did you start having tremors again and feeling really off? I just went on a new dose a few weeks ago and I am not having tremors in the morning and feeling really off for a couple of hours after I take my levoxyl. I’m not supposed to go back until April 20th for blood work.

Has anyone else turned from being hypo to hyper again so fast on hormone replacement?

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in reply to: Great news…I’m pregnant..nervous though #1065975

Congratulations! I am so happy for you. I will say a prayer for you right now. I never had morning sickness with mine so I can’t commiserate there. I really do hope all goes well for you and the baby. My weight is stable now, at least not gaining is on my good list, but I am still not at a normal TSH. I have been able to start exercising about 15 minutes at a time with my Wii. I hope it really help my balance get back in control some.

Write to us when you have a free minute. It will be harder now that you will have more to do, but what a blessing.

Again, congratulations!

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in reply to: Hyper symptoms #1066046

I had some times when I was really hyper when my muscles acted like they wouldn’t extend and they really hurt. This was especially prevalent in my legs. One morning I couldn’t stand up in the shower. The doctor on call that weekend cut my PTU dose in half. He said it was a side effect. I went on methimazole later on and didn’t have that again. I have fibromyalgia as well, for 16 years, Graves only 3. The muscle "things’ I experienced while hyper were very different than just sore. Hope that you find some relief soon. Do you stretch every morning in the shower? I did this and it seemed to help, the warm water and all felt good while I was stretching.

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in reply to: Too much levothyroxine #1066068

I’ve heard of salt deficiency causing symptoms like that. I’ve had some days when I feel really off and I’ve notice that staying hydrated helps me too. Since these things don’t last long I haven’t worried about them too much yet. My levels aren’t within normal range yet either. I am getting there. I was going to ask my endo about the thyroid being off causing any small problems with blood sugar levels since it’s part of the endocrine system too.

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in reply to: 4 months post Rai, 88mcg Lev, no weight gain-VERY BLOATED #1066107

I have the same tummy now. I wondered if some of it had to do with the fact that my bowels were/ are somewhat out of whack right now. I am still hypo clinically. I have tried to make sure that I am drinking lots of fluid during the day. I haven’t put on more weight since I went hypo while on ATDs more than two years ago but what I have isn’t moving away either. Had RAI in May 09 and went hypo in Sept 09. Been on levoxyl since then trying to get the right dose.

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in reply to: 4 months Post RAI-Change with a Vengeance #1066127

I’m on my sixth dose change of levoxyl after staring my HYPO in September of 09 after RAI in May 09. Congratulations on your new situation. It means that you can start to get better now. I am hoping that this new does really does make me start to get close to normal. I still have ups and downs but on the whole things are a lot better.

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in reply to: Just how crappy did you feel after RAI? #1066166

Corinne,
I am now 10 months out from my RAI and I’m still not in normal range with my hormone replacement. I have good days and bad days. If you search for my posts from my sign in ewmb you can read some of my early questions etc after I had RAI. There are some good threads here about that as there were several of us going through it at the same time last year. It is so different for everyone that no one should predict a definite for you. I hope that you start to feel better soon. I did feel good as I passed through the "normal" range of TSH for a few weeks before I went really HYPO eventually.

Good luck,
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in reply to: Low Light and Balance #1066184

Do you know a name for that one ? My father had menieres that ended up with him having some of his middle ear removed. He had to learn how to walk all over again. Later in his life he found that he had Graves.

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in reply to: Low Light and Balance #1066182

My balance has been shot since I found out I have Graves. I had real problems with vertigo during my really hyper periods. I had an attack just two days ago. I am still not in my normal range for TSH since having RAI last May. I hope that some of this balance stuff disappears when I get there. It was like the world was tilted for me too. People would say oh you’re dizzy and I’d say no I have to hold on to things to make sure of where I am in the room. I would walk down the hall and run my knuckle along it as I walked to make sure my legs didn’t feel too wobbly. I called it getting the wobblies. I get it still sometimes when the air pressure goes way down when a storm is coming too.

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in reply to: Just a MOAN for yesterday #1066196

I haven’t talked to the pharmacist. I will mention again to my endo in April when I go back for another visit. I have been having my blood work done at my local GP. I only have it go up like this when I am closer to my period, such as it is. I have been told I am going through menopause as well right now and know that that can make it go up some. It never stays up. In fact yesterday evening after it went up to 130/80 it was down to 106/64 two hours later. :” title=”Question” /> I can’t seem to say that everything or anything is still thyroid or not. My TSH is still too high-14 at last test last week. I hope that when I get toward normal I will be able to try to exercise again and get things separated in terms of what’s causing things.

Thanks for the note. It really does still help to get things off your chest here where people know you’re not crazy.

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