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in reply to: Early TED how did it feel? #1064570

I turned 47 yesterday and went through the "old eyes" change around 40 and that’s when I started wearing bifocals. I use an optometrist here locally but probably need to see an opthamologist again sometime again. It just seems weird to me that I want to close my eyes a lot. Could be the muscles changing as you say.

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in reply to: Early TED how did it feel? #1064568

THANKS Shirley,
I am doing the craning of my neck to see through my not even a year old bifocals. I hate doing computer work. It seems like I can’t focus. I am not having double vision as far as I know. I work in an office with no natural light and that’s awful. I did get some natural spectrum lamps and that helps. I turn off the overhead sometimes. I just feel like my eyes are tired and they seem bloodshot a lot. That may be my allergies and the air conditioning.

I have used drops for dryness for 16 years already since I was diagnosed with fibromyalgia. Did your eye pressure go up a lot during the time you were changing lenses? Did you get headaches?

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in reply to: Will this ever settle? #1064554

Hyperm,
Glad to hear that you are hanging in there. I am not settled yet after almost a year since my RAI. My last appointment the endo talked about adding some T-3 to my mix if this next dose change still leaves me unsettled. She said that she has patients who really benefit from it. When is the baby due?

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in reply to: One year from RAI #1065526

Went to new endo yesterday, she is great so far. My old one retired and recommended this one. I am having a lot of hyper symptoms again and she told me to drop my levoxyl dose to 100mcg/day immediately to see if things will get better. I was on 100 four days a week and 112 three days a week. No blood work yesterday but she said in three weeks if I’m not improving we’ll have to look at dropping things further. Hope I can get this more settled soon. I am, as is everyone with this problem, irritated with not being well yet. As always this board has been a great help.

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in reply to: methimazole side effects #1064744

Do you have a rash? Lots of people have had reactions to generic methimazole over the years. I was allergic to one of the fillers in the drug. You can read my old posts, search for posts with ewmb, and read the threads that went with that. When I got off the generic methimazole and went on the brand name my "allergy" went away after several weeks. You should let your pharmacist know. They can research for you, or you can get some info on the internet, which ones have povidone in them. This is a filler that is in in lots of medications not just methimazole. You can google the letters and numbers on your tablet with the name of it in the images section and a lot of times it will come up and you can get the manufacturers name then. If you can’t find this or your pharmacist isn’t helpful you can ask your doctor or nurse to call your local drug information center for you.

Good luck and hope the itching stops soon.

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in reply to: HypER to HypO almost overnight? What is going on?!?! #1064785

Cynthia,
I had horrible chest pain when I was first really sick with my hyper stage. It landed me in the emergency room one weekend.
The cardiologist they sent me to was the one who asked me if I had been checked out for hyper. Encourage her to get tested as soon as possible.

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in reply to: surgery???? #1065087

When I was very hyper I had a lot of trouble with my digestive system. Had heartburn, acid reflux, stomach pains, bowel issues as well. It could be related for you as well. Once I was regulated, on anti=thyroids at one point and then after my RAI all that went away. I ate coconut macaroons when I had loose bowels and they helped a lot. An old folk remedy from The People’s Pharmacy folks. Might work for you too. Hope you feel better soon.

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in reply to: Effect on your Menstrual Cycle – Sorry guys…. #1065136

46, almost 47, and periods have been really strange,off cycle etc. since getting Graves three years ago. GYN said that it could be the Graves and possibly perimenopause too. He did an FSH test and that came back a little off but my endo said that being hyper could cause that test to be off too. I’m still not settled on my replacement hormone after RAI in May 09. Almost there but periods are still strange. I think it’s a little of both. You might want to make sure that someone knows about this and get tested for Osteoporosis too. I now have that at this early age. All docs say caused by hyper state. I can’t do any kind of treatment right now for that as I am not post menopausal. It stinks doesn’t it having all these weird changes to your system and then having the period thing on top of it all. I always feel better, less hyper, after my periods came and went. Then about two good weeks and then hyper feeling again even though I’m technically not hyper right now.

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in reply to: What are the signs of an allergy to Methimazole? #1065199

I had an allergic reaction to a filler used in the generic methimazole. You can search my old posts to read about that. When I went on the brand name methimazole my rash went away, it did take several weeks to disappear. I had the rash on my trunk and my legs and it was very itchy. Hopefully you can get this figured out so you can try it again if you want to do that.

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in reply to: Newly diagnosed with Graves #1065208

I’ve had fibromyalgia for 15 years now and had Graves for 3. Had RAI in May of last year. Getting close to the right replacement hormone dose. My muscle/fibro issues have gotten some better but as I start to exercise again etc.. things don’t always feel right. Hard to know which is which sometimes. Did you have a rheumatologist work with you on the fibro diagnosis? Did you have 11 of the 18 trigger points tested as sensitive etc? If not you may not really have fibro as Ski mentioned. The muscle wasting from Graves is very different than what happens to your muscles with fibromyalgia, but the pain and suffering is so similar there’s no way to tell sometimes. There is a good web site to read things about fibromyalgia called the Fibromyalgia network. Can’t remember the URL right now but if you google it you can find out some things there. I’d be glad to tell you more about my experience if you are interested.

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in reply to: 6 MONTHS RAI AND STILL A ROLLER COASTER RIDE #1065335

I am more than a year out from RAI and am still working on getting things just right. I try to focus on the fact that I am a lot better than I was several years ago and that I should never be able to go back there again! That said, I feel your pain about waiting for things to work. That can be very disheartening when you start to dwell on it. Maybe writing a short list everyday of the things that you can accomplish and what was good about it might help you reflect on the getting well side of things.

Hang in there…….

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in reply to: One year from RAI #1065519

Lacie,
Yes I am on the right path too just wish, as always, that it would happen faster. I too feel hyper and then hypo sometimes. I will get to see a new endo in a few months and I’ll see what her take on things is. My old one retired. I don’t have palpitations very much at all. I have tremors when I get really tired. I know that my muscles aren’t up to speed yet. I have never tolerated heat very well so I don’t notice a difference there. Just a few hot flashes now and then. I think that’s due to other hormones.

Glad to hear that you are doing well.

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in reply to: One year from RAI #1065517

Heard back from the endo who isn’t worried about the free T-4 being high right now since the TSH is still not low enough. The nurse who passed on the message emphasized that this does not mean that I am hyper right now. In other words from what I think I am still not very settled and things are still up in the air in my blood stream. I have no choice but to wait things out. Didn’t get a new test date for bloodwork as my endo is retiring next week. I will see how I am six weeks from my last one and then I can try and get some new numbers.

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in reply to: One year from RAI #1065515

Question for those who have been trying to get to the right dose of levoxyl or synthorid. As I mentioned in my earlier post here my TSH is 4.4 this last time but when I got the test results in the mail today it showed that my Free T-4 is above normal now. Is that ok? I know that it measures what’s in the blood at the time of the test. Does it mean that I have too much or that I just have a good supply now and that the TSH will continue to go down as this all settles out?

Thanks,
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in reply to: Incidence Rate of Thyroid Dumping After RAI #1065419

I had a dumping after my RAI at about 3 weeks out that lasted a little longer than Bobbi’s. The next time I had my TSH taken after RAI it was lower than it was before I swallowed the RAI. I think your endo sounds like she might not be right for you if she gets irritated with things so easily. Hope that you can get some help soon.

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