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in reply to: 6 weeks post RAI and all better?!? #1068398

Julie,
I hope that Friday goes well for you. Think about how you feel right now. When I had my RAI I didn’t want to ever go back to feeling like I had been when I was so hyper. Taking replacement hormone is not like taking the medication which you couldn’t. I had 15 millicuries. 20 isn’t an unreasonable dose depending on your uptake numbers etc.. Playing with trying to be "normal" isn’t a good idea in my opinion. If it doesn’t work and you stay hyper you would have to have an even larger dose the second time around and that might take up to six months after the first dose. I am waiting on numbers right now and hope that my RAI has done it’s job and I am going hypo so I can start to feel better.

I know how scary it is. I felt sure that I wouldn’t be able to walk to the hospital from the parking lot. I hope that once you have the RAI you will start to feel mentally that you are on the way to better health again. It made me feel so much better to know that I had finally gotten help that might work for me since the medication didn’t take me to remission.

Do call your doctor though and talk if you need to but the nuclear medicine folks will make the final call on the dose if they aren’t given any specifics by your endo. They will most likely not want to lowball you on the dose.

Good luck,

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in reply to: Weigh-in (just for fun) #1068718

Lacie,
You could get noodles and get a jar of ready made sauce to keep on hand for next time. I did make spaghetti and it was good. I used the bread maker for some bread too. I think I’ll go in this morning and get my levels checked. It’s just 10 minutes up the road to my GP. I can’t go all the way to the endo every time that’s too far. I was going to wait a week to make it an even month but I think I will feel better knowing if something is changing or not. I also don’t want to be stuck in the Labor Day slow down. I wish there was a home test for this

Just sitting here typing I feel like going to sleep…………….

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in reply to: Weigh-in (just for fun) #1068716

Feeling really yucky. Hoping it’s that I’m going hypo. Have had real bloating issues the last few days. I don’t know if it’s what I’m eating or not enough water. I am piling on water today. It’s chilly so I am making spaghetti for supper. Trying not to eat too much at night but it’s hard since I sit alone a lot. My teenage daughter is in band and always needing a ride from here to there so my husband is in the car when I am splayed out on the couch at night. Trying to remember by ww tricks like eating with my left hand and putting things in small bowls instead of bringing the container out of the kitchen. This blah feeling is so hard to overcome.

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in reply to: Weigh-in (just for fun) #1068713

My four pounds was really two I guess. Maybe some water loss that came back. Oh well.

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in reply to: Weigh-in (just for fun) #1068710

Good news here. I am feeling better and have lost 4 pounds! My heart rate was 76 when I got up this morning. That’s the lowest in the am that I can remember in a long time. I have to decide how long to wait to get blood work done again. I had it about 3 weeks ago so figure next week would be good. Here’s hoping the RAI is almost done with the miracle!

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in reply to: First Doctor appoint today since RAI 3 weeks ago #1068432

Deb,
You should probably count on staying on the beta blocker for awhile. You can’t just stop it abruptly. You can lower the dose slowly over time but since you are having such a high BP you will really need to ask your doctor about how long to stay on it and how to taper off.

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in reply to: results of the lab #1068436

Sounds like hyperthyroidism to me but that can be caused by other things than Graves. Have you had a thyroid scan or uptake test? Have you had an antibody test (blood work) done? The results of those tests can help make a diagnosis of Graves.

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in reply to: Allergies to Methimazole/ Tapozole – how long will it last?! #1068958

Just the same time frame apart every day was what I was told. So as close to the 8 hours apart as you can make it.

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in reply to: What happens after RAI? #1068449

Julie,
I am almost 4 months out and feel some better. I have not started to exercise yet really. I am doing more. I have not worried too much about weight right now but am trying to watch what I eat. The weight that you have lost being hyper isn’t good weight to lose, the muscle mass so you will most likely gain some of it back when your levels stabilize. There are some good posts from SKI in the past on this same topic. You need to eat enough to be healthy and keep going. The advice I’ve heard is to settle your levels first before trying to really change weight.

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in reply to: Allergies to Methimazole/ Tapozole – how long will it last?! #1068956

Glad to know that you are feeling better. My rash took about two-three weeks to totally disappear. I am rash free on my brand name and hoping I won’t be taking it for long. The PTU does ebb faster than the methimazole so make sure you are exact with your timing so you don’t get so many ups and downs. That was one reason I changed from PTU several years ago.

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in reply to: Questions and more Questions #1068458

Linda,
I had those types of feelings when I was first on methimazole. I think my body was so screwed up with the hyper symptoms that it couldn’t keep me straight for a while. I had to lie down quite often when I was at the doctor’s office trying to figure out what was wrong. At one point was sure I was having a heart attack. You should probably let your doctor know. I didn’t take beta blockers when I was first sick. If you still have it read the insert that came with your beta blocker from the pharmacy. If you don’t have it you can call the pharmacist and talk with them about side effects.

You can have other complications of Graves that are Thyroid Eye Disease and Pretibial Mxydemia. Not sure I spelled that last one right. It’s when the skin on your shins/legs changes and swells. There are posts about both of these in abundance here. You may never have either one of these though.

Hope you feel better tomorrow. Make sure you are hydrated and caffeine can make things worse right now. At least it did for me when I was like that.

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in reply to: Cancer #1068469

Marie,
So sorry to hear of your news. I know that you are glad to have it though instead of wondering. Have they mentioned anything about treatment beyond the removal of your thyroid yet? Hope you are getting to spend a lot of time with your boys as you recover from the surgery. Please let us know what happens and we will certainly whisper a prayer for good things.

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in reply to: Weigh-in (just for fun) #1068707

That’s great news. Glad that you can start doing your running. I am still waiting for my turn.

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in reply to: Gutted and fed up :( #1068485

Hi Hyperm,
Good to hear from you. Is there any chance that when the scarring is complete that things might get better? Don’t know much about vocal cords. I do remember Julie Andrews, Sound of Music, Mary Poppins, had some surgery and can’t sing anymore. Sounds like the change in medication level will be good and make you feel more like doing things.
How are other things going? Have you been able to talk about going back to work? Is your weight coming under control for you? I am watching my symptoms for when the RAI will kick me over to the other side. My pulse has been going down steadily over time. I’m not as low as you got after your surgery.

Hope that you feel better soon.

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in reply to: A Question and a comment #1073192

I had mine done at the same time. You might call the place where you have the appointment and just ask them to explain to you what they have on the schedule for you. Neither one was painful, if you’re ok with shots. You do have to lie on a table for the scan that shows the pattern. Let us know what happens.

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