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in reply to: First TSH reading since I started Synthroid 6 weeks ago… #1068245

Krystal,
I agree with Jake. Get your doctor to see your lips and talk about changing. The information I got from the DI center when I was checking was that synthroid and one other one had the povidone in it that I didn’t want to take. Jake’s right about the dye but the other things are what I would worry about too.

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in reply to: Raising hormone levels with levoxyl #1068258

Just remember that caffeine is a drug and can affect you in ways you don’t want either. Be careful with that hot iron!

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in reply to: Raising hormone levels with levoxyl #1068256

Lacie,
Amen to all you said. I actually had a meeting around lunch time today and had to drive off campus for it and I was worried. I know what you mean about feeling like you can fall asleep at the wheel. Did they say anything about your low heart rate?

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in reply to: RAI, not so godd reaction #1068327

Julie,
I am getting there. I was really bad for a few days right before my period started. You may not be eating enough if you are still hyper. I wouldn’t worry about calorie count now but would eat well when you are hungry. Glad to know that the eye drops are helping. I bought one of the bigger bottles and am just keeping it in my purse. But like you I don’t always remember to use them.

One day at a time……

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in reply to: First TSH reading since I started Synthroid 6 weeks ago… #1068242

Krystal,
Glad to hear that you are doing so well. The brand that I am taking levoxyl doesn’t have the same inactives as synthroid. The povidone in synthroid and some other meds is what I think was making me itch on my generic methimazole. Good luck with your lips. That must feel awful somedays. I too was leary of doing the hormone in the morning as I have to get up and go and that hour is hard. I asked my pharmacist and she told me that I could take it at night right before I go to bed. I just don’t eat anything after say 8-8:30 so that’s about 2.5 hours for me before I go to sleep.

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in reply to: So, why can’t I start replacement thyroid? #1068249

Lacie,
Sorry to hear about your troubles. I too am having questions about the dosing of my hormone after only 12 days. You probably saw my post from this afternoon. I would really be worried about a pulse rate in the 30s. That is really low even for you. My pulse has been staying fairly stable in the last few weeks but if I sit down and rest for a while it will go down fairly quickly to the mid 60s which is low for me.
I might come at it from the point of view of your heart health tomorrow. You don’t want to be in trouble there. Ask for a standing order for your local doc for blood work since you had trouble there before so you can go once a week if necessary. I feel like the doctors need to understand that we really do feel different when things start to change and that we should trust our intuition on asking for labs. I know that they don’t want to have you go hyper again with too much hormone so that may be a reason on paper not to start replacement too soon. I agree that the feeling is lousy. It’s so different from hyper. I told my husband that I am still so tired and he asked me if it were different and I said yes. When I was hyper tired it was like I worked all day long and needed to sit down and maybe it would help. This is like I never even got started and I need to SLEEP to restore my energy but SLEEP doesn’t do it.

Let us know what you find out tomorrow.

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in reply to: RAI, not so godd reaction #1068325

Katet,
Glad to know that you are healing. Bumps in your mouth are annoying aren’t they. I used to get these calcium buildup things near the back of my mouth and the dentist would knock them off. He said they weren’t dangerous at all but annoying. Hope you continue to move forward.

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in reply to: Weigh-in (just for fun) #1068742

Lacie,
I am doing the same thing. The puffy bloated feeling and the weight coming on every day it seems. I have only been on the levoxyl for a week so we’ll see if my weight can start to stabilize some. Sorry you didn’t get your results. I was wondering why we hadn’t heard from you. Sounds like you have been really happy this week. Keep it up.

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in reply to: Finding Opthamologist who works with TED #1068274

Thanks,
I just looked at the list for my state and there are two that are about an hour and a half away and they are on my insurance. Now I just have to get an appointment. I may ask my endo if he can make a referral so I can get in sooner.

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in reply to: 1 Day After RAI #1068289

I took methimazole after my RAI. Not immediately but when I was feeling so bad and the change was happening slowly. It helped me get through a rough patch. I’d call and ask especially if you still have part of a prescription at home and it would be easy to go back on it.

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in reply to: 1 Day After RAI #1068286

Sounds like your beta blocker should be helping keep things under control. Are you taking it once a day or twice a day? I was on a bb for a short period of time. I just took it once a day but some others here have had their doses spaced out through the day. Take it easy and rest a lot. I sat in an arm chair a lot right after my RAI. Keep drinking and eating too. I had a rash with one of my generic atds and that was scary but not like your reaction. I’m glad that you are on your way to recovery.

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in reply to: What’s next #1071818

Kimmer,
How did they know to change the dose when you were trying to get settled? Did you have to have blood work each time? I am just wondering as I have just started a week ago on 25mc. They said go back in 4 weeks for blood work. I am having headaches all the time. Had RAI beginning of May. Took me about 4 months to go hypo. 25mc seemed low to me but I was still on tapazole and went off that at the same time I started the levoxyl. Glad to know that you are feeling better.

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in reply to: 1 Day After RAI #1068284

Hi,
It takes several months for the radioactive iodine to have it’s full effect so you will still feel the hyper symptoms for a while. I didn’t have any itching. That may be a reaction but haven’t heard of it. Your throat may feel off for a few days. Keep drinking a lot and sucking on candies or chewing gum. You should be able to take some pain medication like ibuprofen if it gets worse. Good luck with your treatment. It took me about 4 months to have mine show progress in my tsh readings.

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in reply to: Im sorry but i dont think i can go on anymore… #1068295

Lauren,
I hope that you don’t get too discouraged. I just had my RAI in beginning of May. I have just started my hormone replacement and was told it could take up to a year to get things settled. You said that you are 44. I am 46 and am going into menopause now too. My gynecologist told me that my thyroid issues would be so muddled with my menopause symptoms that I had to make sure and tell doctors about all things. They can do hormone tests to see if you are going into menopause. Are your periods still out of whack? Mine definitely are. There are side effects to all medications that aren’t always obvious if they don’t happen in a lot of people. My daughter was on prozac for a while and as she is a teenager we had to watch her very closely for symptoms of suicidal thoughts etc.. There is something called a blackbox warning on these drugs in the states as they can have really harsh effects on the very things they are supposed to help sometimes. She is off the medication now so I haven’t been reading up on it lately.

Where do you live in NZ? I have family in NSW in Australia. My aunt there, not my blood relative, is hypo. She sees someone in Sydney about 400 miles from her home. Surely there is a good endo in Aukland or Christchurch. I’ve read about people who’s labs were all normal but they didn’t feel right until they got the right dose for them.

Over my illness I too had so many different ups and downs. As your thyroid controls so many things in your body it can really take a long time to get better even when you have normal levels of hormone. Try thinking back to your worst days and see where they fall in your estrogen cycle. I kept telling doctors that I was always feeling better after my periods were over and they told me it couldn’t be my thyroid. I finally read about estrogen levels affecting a protein that binds to something that changes the thyroid levels. I can’t remember the specifics.

Please let us know how you are even if it is a bad, cross mood you are in. It’s great to get it all out here and learn from other people who’ve been through the same thing.

Take care,
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in reply to: RAI, not so godd reaction #1068323

Julie,
I know what you mean about the driving. I didn’t drive for a long time when I was really hyper. I do think the anxiety about it got worse when I kept thinking that I wouldn’t be able to make it home from places. I have felt less anxious and off balance in the last week or so. Do be careful. Have a better day.

Katie,
The salivary glands can be affected so you are right to be concerned. Even now after four months sometimes I feel like mine on the left side isn’t acting quite right. My husband has Sjogrens and had a tumor in his gland that had to be removed. You can massage that area after you warm it with a hot washcloth or rice bag. That does help move things through.

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