[Ems]

in reply to: Video about Graves’ Disease #1071706

Hi Starvee
Hope your going well… I showed the videos to my parents and they have been invaluable.. they had no idea that affects the whole person ( the mind) like it does.. I have just been away to Sydney Australia so will look forward to talking with them more about the videos. My mum and Dad had me when they were young ( I am 35) so alot of the music you used are my Dads favourite songs that he often plays( funnily enough I have often thought he has Graves disease!!!) maybe this will open up a way to talk about it a bit more…so thanks again. I am feeling good the only new difficulty i am experiencing at the moment is eye twitching which I have had in the past but not for years. I am stll on PTU 2 tabs am and night eventhough my levels were in the " normal range".. Did you ever worry about your Endo taking your levels too low, and not in the right range for you? or did you have a good open relationship where you could discuss this?
Anyway hope you are feeling good – I am yet to share the videos with my sister, its ironic that so many in my family have such busy rushed lives, them finding the time to stop and watch seems difficult – maybe thats where the Graves came from!!! thanks Emx

[Ems]

in reply to: And so it begins… #1071559

Hi Blessed, I really felt for you with all your questions, but like everyone else I cant stress how important it is to go on meds while you are deciding what to do – I left it far too long this second time, often you dont realise how unwell you are until much much later.. as for exercise I was told to do very little as you do get muscle wasting and damage your body further!
Take care glad you got some good answers to your questions. I have wasted far too much time so do what you can as soon as you are able Emsx

[Ems]

in reply to: Video about Graves’ Disease #1071705

Starvee – the videos are spectacular – I will comment on You Tube as well.. I have suffered from Graves disease over the last 7 plus years -! The videos touched my heart in such an enormous way as did your post – I felt total relief in reading your post to know you felt the way I did.. The way you have written is incredible you have a real skill!
Thank you I will share your videos with all my family and friends – the music was so many songs I have chosen to play over and over particularly the ones when struggling with Graves.. Thanks Emmaxx

[Ems]

in reply to: confusing? recently diagnosed..anyone?? #1071388

Hi There – I have been reading the posts on this site for weeks and have learnt so much. One thing I went and did was get a hardcopy of all my blood tests and history.. so that I have all the information I really reccomend this. I would really recommed you wait until you are well, because the chance of miscarriage is huge – I had several after the birth of my first daughter and then got pregnant and was on a low dose of PTU so not ideal in many ways, but all worked out in the end with the birth of my second daughter 5 years ago. I have since had a couple of flare ups, one required no drugs and was probably triggered by a virus but now I am on PTU and have been on this for 3 weeks and feeling amazing – my TSH is still very low but my T4 is just in normal range and my T3 just in normal also. You do have to watch your white blood cells as mine are already becoming low and the neutrophils very low – my endo will advise me next week, to take the dose down or what?
Yes your so right there is so much involved and this is a great way to learn more, I have changed my diet, I dont have any caffeine, or artificial sweetners etc and am just entering a really exciting phase of really looking at my nutrition and lifestyle – I know it can be done but like the other posts say its going to take sometime and I will have to be patient – because it is a long journey – good luck Emsx

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