[ely2009]

in reply to: is there a light at the end of the tunnel. #1071023

Hi there. I was gone all weekend so am just seeing this now – didn’t want you to think I was ignoring you. I don’t have time for a long reply, but will say a prayer for you and will write more later tonight.

” title=”Razz” /> Emily

[ely2009]

in reply to: Why I should I go to specialist? #1071011

Debbie,

Like hyperM, my GP said that Graves is "out of his league." I first saw an endo, who I didn’t particularly like. I’m now seeing an internal med doctor who has had a lot of experience with thyroid disorders and I love her!

Emily

[ely2009]

in reply to: Weaning from beta blocker? #1071061

Thanks Sharie.

I’m also weaning slowly and am a little anxious about it. My endo and my regular doc are in agreement that I no longer need it. My heart rate and BP are always fine, it’s the hand tremors that drive me crazy.

I’m also starting to walk again and do some easy strength training. It feels good to be at this point.

Enjoy your trip!

Emily

[ely2009]

in reply to: Ut oh…feeling a little like I use to…Update 5/28 #1071245

Mambear,

You "sound" better than you have been – hopefully that means you’re feeling better as well. It’s SO hard to get enough sleep, but I’m trying really hard to try to squeeze in extra sleep too. It does make a difference. My house has been a shambles lately – so not like me, but I’ve decided that when I’m feeling OK I’m not going to waste my energy cleaning. I hope that soon i won’t have to conserve so much energy but for now I do. Keep sleeping!

Emily

[ely2009]

in reply to: 2-Week Post-Op – All is Well #1071054

Good news! I’m happy to hear that you are doing well. I’m sure that’s a relief.

Take care,
Emily

[ely2009]

in reply to: I need some advice please. #1071090

Liza,

PATIENCE is hard when dealing with Graves. I TOTALLY understand wanting to be yourself again. i was diagnosed in March and am just finally feeling "somewhat normal" SOME of the time. It’s definitely improving amd I am grateful. Hang in there. It’s hard to struggle to get through the days but it will get better.

Emily

[ely2009]

in reply to: Info on atypical nodules anyone? #1071067

Catsmum,

I have no info on nodules/biopsies but hopefully someone will reply that does.

Just wanted to say that I’m sorry to hear about Cat and will be thinking of her (and you). Keep us posted.

In my prayers,
Emily

[ely2009]

in reply to: I am seeking a new Endo… #1071081

Mamabear –

Sorry you had such a bad day. It’s so emotionally hard to deal with things when you’re physically out of whack. You definitely don’t want to deal with that office long-term if you are not comfortable. I’ve learned that Graves is always changing and challenging and you have to make it as easy on yourself as possible. If that means doctor shopping, then it’ll be worth it in the long run. I actually saw my second endo today. She said that she agrees with everything my first has done so far, but she EXPLAINED a lot more to me and took the time to really LISTEN to me – something the other one didn’t seem to have time for. So nothing changed as far as treatment, but I feel more empowered and informed now. A good doc makes all the difference.

Good luck and keep your chin up.

Emily

[ely2009]

in reply to: surgeon consultation – very nervous! #1071116

M,

I can understand your nervousness and anxiety COMPLETELY. I would be the same way.

I guess my advice would be to prepare as much as possible – asking questions like you are, etc. And then focus on the long-term results – how the end of 2009 will be so much better than the beginning. Keep praying and keep us informed. I’ll be thinking of you and will keep you in my prayers.

Emily

[ely2009]

in reply to: Graves Disease and Dental issues #1071172

Interesting….I just began having trouble with receding gums.

Emily

[ely2009]

in reply to: Hello! #1071141

Hi Princess.

I’m in Ohio too. Farther south than you.

Glad you finally were diagnosed and that you can see improvements with the meds. That is a HUGE step.

I too have "dizzy" spells – more before I was on meds, but some still. They aren’t your basic like get off a merry-go-round dizzy, but definitely something off in the head – somewhere between dizzy and light-headed. I told my husband that sometimes it feels like I have to hold my head together. That’s an annoying, and sometimes scary, symptom.

ASk your guidance counselor about scholarships. There are LOTS of different ones out there. There are probably some good websites as well; I just don’t know what they are. It’s worth looking in to. I do know that there is usually money out there for women in science/math fields.

I haven’t gained weight back yet, but I’m really hoping that even if I do I’m able to focus on feeling HEALTHY finally and not worry so much about the weight. I’d trade being hyper for chubby anyday!!

Good luck,

Emily

[ely2009]

in reply to: New to this website #1071148

Hi there. I, too, have found this board to be incredibly useful – informative and supportive. It’s SO nice to know that we are not alone and that we can’t just "snap" out of it. We may not look sick, but we can feel terrible at times (or all the time). I feel guilty that my husband has to carry more than his fair share, but am lucky that he has never once complained. Good luck and hope this board helps.

Emily

[ely2009]

in reply to: rai update/detils #1071194

Krystal,

Even when you FEEL sad and worthless – you ARE NOT sad and worthless. Hard to remember when you’re body is letting you down. Hope you are relaxing some this week. Thinking of you.

Emily

[ely2009]

in reply to: Ut oh…feeling a little like I use to…Update 5/28 #1071235

I know exactly how you feel – it’s been my GREATEST challenge with GD. My days have always been filled with children – my 2 and I’ve also helped raise my two nieces. Being a mom has been my greatest and most anticipated joy in life. It’s very frustrating now to dread when my oldest gets off the bus because I just don’t have the energy for him. I’ve tried really hard to focus on what I am doing for/with them and not what I used to or think I should. I have to believe that it won’t be this way for long. Give your kids kisses and tell them you love them to the moon and back.

Good luck with your appt.

Emily

[ely2009]

in reply to: Ut oh…feeling a little like I use to…Update 5/28 #1071229

Mamabear,

I don’t have the answer about T3 – I’m just learning all of that myself. But even though your TSH is "normal" could it be that it is low for you? The "normal" range is pretty wide. Just a thought.

I’ve been thinking about you this week. Hang in there.

Emily

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