[ely2009]

in reply to: Just diagnosed with Graves…and I am scared #1070474

Julies,

Did you call the office to ask for results? I’ve learned to be "pushy" at times. My first endo’s office was less than efficient and i would’ve never heard from them about tests, etc. had I not been thte one to call. To them I was just another patient, but meanwhile – I was un-medicated, anxious, shaky, scared and overwhelmed!

hang in there

Emily

[ely2009]

in reply to: New to Graves, curious about all this #1070515

My first round if blood tests were "normal" too. But I KNEW I was sick. I pressured my GP to keep looking and sure enough, 4 weeks later I was technically hyperthyroid. I had all the classic symptoms as well. One of the things I’ve learned is to be persistant. No one knows your body like you.

Good luck.

Emily

[ely2009]

in reply to: ovulation hormones and bad day #1070491

I seem to have worse PMS than I did before. It amazes me how GD affects EVERYTHING!

Emily

[ely2009]

in reply to: New to Graves, curious about all this #1070509

I, too, had swelling. In fact that was one of my first symptoms – to me it felt like something was constantly stuck in my throat, like when you have a cold and can’t get the mucous to come up or go down. Gross, i know. But it wouldn’t go away for months. Ive been on methimazole since mid-March and the swelling has gone down. Sometimes i still get that feeling, but not constantly.

The beginning is nerve-racking because there is so much to process and generally you don;t feel very good at all. It does get better – takes patience and time, but it’ll happen.

Emily

[ely2009]

in reply to: 22nd of July – date for op very nervous! #1070713

Sorry to hear about your UNDERSTANDABLE anxiety. For me, the newness of information is very overwhelming, so maybe after this new info sinks in and you find out more about it, you can relax – a little.

Keep focused on your AT (after-thyroid) days. ” title=”Smile” />

I’ll say a prayer for you!
Emily

[ely2009]

in reply to: What’s next #1071814

My pulse is high in the morning. It makes me anxious because I feel like it should be low since I’ve been ASLEEP. I probably don’t take it as much as the day goes on because I get busy and distracted. I’ll have to pay more attention to it in the evening. I do feel pretty good though – wish I wasn’t worrying about it so much.

Emily

[ely2009]

in reply to: What’s next #1071812

Congrats on the Baby!! How fun!

Did your doctor tell you what to watch for as far as pulse rate goes? I just weaned off of my beta blocker – took my last half dose on friday. Since, my pulse has been in the upper 80s and low 90s at rest. On the beta blocker it was always between 60 and 72. My doctor told me it’s fine under 100.but I don’t like being able to "feel" my pulse. I’m a little anxious about it. I don’t want to go back on it because I can already notice a change in my energy level. i hope it’s just the rubber band effect that Ski’s talked about and will decreade soon.

Emily

[ely2009]

in reply to: Help me sleep PLEASE!! #1070652

I like what Ski said (she’s so wise ” title=”Smile” /> ) …that you will "come to the other side." i wouldn’t have believed it at the beginning of this year or even two months ago. But i think I finally have gotten there – not "perfect" or "normal" yet, but much improvement. i feel like a person again. It does happen –

Emily

[ely2009]

in reply to: Help me sleep PLEASE!! #1070649

Michelle,

I had trouble sleeping for a time also. I didn’t try any sleep meds, but I noticed an improvement in my sleep after being on the beta blocker and methimazole for a few weeks. I don’t remember if you have started ATDs yet, but you may notice an improvement once some of your other GD symptoms start to improve.

No sleep is no fun – especially when you have to function during the day. I think I remember you saying you have kids, too – so I KNOW you need your sleep.

The beginning of this is the hardest. But it’s kind of nice to finally start to figure out why things have been "weird" for so long without knwing why. ” title=”Smile” />

Emily

[ely2009]

in reply to: 22nd of July – date for op very nervous! #1070710

I think we are alike…and i was trying to think what would help me with the waiting until the op date. I think you should count the days until the 23 of July (the day after the op) and then have a countdown, not to the surgery, but to the day you start healing – your road to recovery. you’ve had such a difficult time so far – you’ve got to think about these next weeks as the end of this horrible time. you are having the op to get all of this behind you. try to look beyond it….into your healthy future. ” title=”Wink” />

Hugs,
Emily

[ely2009]

in reply to: 22nd of July – date for op very nervous! #1070708

I would choose pregnancy over GD too – and I was a VERY sick pregnant person. I had "all day sickness" the whole 9 months, but loved every minute of it! I guess because there was an end in sight. ” title=”Smile” />

Emily

[ely2009]

in reply to: 22nd of July – date for op very nervous! #1070703

Kids have a way of making us feel guilty, but also being matter of fact…if only it were as easy as that and now you were ready for the swing park. but it won’t be long….

This is one of those times when you don’t want time to pass – yo don’t want 7/22 to get here, but you wat it to be over with. ” title=”Smile” /> My son would say I wish I could wiggle my nose and make time fly for you so will feel better sooner.

Praying for you!!!

Emily

[ely2009]

in reply to: Newly diagnosed and not much information……..I’m scared #1070728

Hi Michelle.

Boy you had "teaxtbook" symptoms of Graves. I did too until my diagnosis in March of this year. I’ve been in methimazole (generic for Tapazole) since and have improved greatly. I did feel worse before I started to feel better. Very frustrating. The worst part of it has been how it’s affected my family life and my kids. Mine are 9 and 5 so they understand somewhat, but I still hate not being the mom I used to be. It’s only temporary, though. And like hyperm said, you will begin to (be forced to) priortize what’s important to spend your little amount of energy on – the kids, work, etc…..not the floor or the dishes.

Be patient – which I know is hard. If you look at my postsfrom March/April you I sounded alot like you – felt like I was crazy and very anxious and frustrated. But it will get better – SLOWLY.

Take care.

Emily

[ely2009]

in reply to: three weeks post rai… #1070733

Hey I was wondering how you were doing.

Sorry to hear that you’re not "improving" as fast as you’d like. It’s SOOOOO hard to be patient when you feel like you do. Hopefully, it’ll be soon that you notice bigger improvements.

Emily

[ely2009]

in reply to: Tremors after RAI #1070770

Hi. I know what you mean about trying to watch out for the "good signs." I sometimes fall into – oh, poor me, I feel so bad today. then my husband will remind me how bad I REALLY felt for weeks at a time a few months ago. It’s all about perspective. ” title=”Smile” />

I, too, have tremors. At the beginning they were really bad and constant. I’m on a low dose of methimazole and my TSH has just creeped into the "normal" zone. Some of my symptoms are lessening, but the hand tremors are still around – not constant, but some days are still pretty bad. I think that I’ve read this is normal because the excess hormone can remain in your body for several weeks. i can’t wait for them to be gone for good!

Hope you keep feeling better.

Emily

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