[elisiaann]

in reply to: Fact or Fiction???? #1171323

Thanks…That is what I am thinking. I wouls like to go ahead and speak with the surgeon and make sure I am on the right path.

[elisiaann]

in reply to: Fact or Fiction???? #1171321

I forgot….as far a surgeons go I am going to use a surgeon out of UAB that specializes in tis surgery. He is supposed to be the “best in the South” according to my dr. He will not refer me until I am normal. Should I be waiting to meet with the surgeon until then, or should I be trying to see him now?

[elisiaann]

in reply to: Fact or Fiction???? #1171320

I have been on the 20mg a day since the first week of December (without missing any doses) and have not felt a change at all. I have had two appointments since then, one in February and then one April 5th. Both times he has said that my numbers were better, but not normal. He never tells me what my labs say…which I guess is my fault for not asking the actual numbers. This last appointment I kind of shut down after the bad news, so I think that triggered his response and calling my mother. My husband is actually my first point of contact for emergency, followed by my mom. I think he skipped over my hubby since my mom has been attending the appointments with me. My husband is a firefighter, so he seems to always be gone on my appt days. Like I said, he discovered that my RX had been filled and has determined I am resistent, but feels that I will be able to get there with more time, and possibly another dosage increase. My problem is that my doctor never really cares to address my symptoms. I am not sure if it is because of the communication barrier (he is Oriental and can be very difficult to speak with), or if he is only concerned with my numbers and nothing further. He told me to stop all medications, including the Cymbalta for fear of intereference. I am pretty sure he assumed the Methimazole would replace it as a relief to my pain, but that is not the case. I didn’t ask for any research or better explanation. He said stop, so I did. As far as my white blood cells…I was told by two endo’s that I was not a candidate for PTU because of my counts significantly dropping often. It is a more long term medication, so I was told that with my system the way it is I would end up hospitalized for ever cold or infection I came across. Since they thought I would be on the Meth for only 2-3 months, they felt it was and is my only prescription option. My dr is still saying that it is my only choice until I normalize for surgery. I know this is only the beginning, which is funny since it has been ongoing for 2 years, but I am ready and willing to do the work to get back to being me.

[elisiaann]

in reply to: Fact or Fiction???? #1171318

I have been on 20 mg a day (2 pills at 9:00 pm), every day since December 5, 2011. He is talking about increasing my dose in June if he doesn’t see the numbers that he is hoping for. I have seen several posts of people regulating on just 5mg a day, so this is insane to me! My first visit he didn’t explain its importance to me very well (his words, not mine), but ut wouldn’t have made a difference anyway. I just couldn’t remember to take it…brain fog! Now I have a system in place and take it and my antihistimines at the same time. The reaction I have with welts isn’t from the Methimazole…they already ruled that out. It has a technical name that I can’t remember. It is rare, but known with Graves’ (from what my dr says). He says its main trigger was stress, and now I am stuck with it as long as I have a thyroid. Thank you for responding. I am glad someone knew it was required. Like I said, he was the only one I have heard say it.

[elisiaann]

in reply to: diagnosed with Graves Disease Today..4-20-12 #1171308

I am in shock! Your doctor only has you on 5mg a day? I am on 20mg a day and he is thinking of increasing in June if he isn’t happy with my numbers. I have been on 20mg a day in December, and I don’t feel any different. Still miserable, so I wish you the best!!!!

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