[elaineH]

in reply to: New User? Start Here! #1061140

Thank you Kimberly for your fast reply. Interestingly, the Endo in Maine said no more radiation or xrays. See you are from Phoenix. I am am too! Lived there since 1991. Moved to Maine in July. I will take your advice and post to the general area. Question, I am seeing that stress for me can be a major culprit on bringing on the episodes. Have you or other members experienced the same?

[elaineH]

in reply to: New User? Start Here! #1061138

Hello,
Found out last June that I still have GD. It has been 7 years since I had radiaton treatment for GD. All that as been done since then was TSH blood tests – nothing else. I found myself last June feeling like I did 7 years ago when I was diagnosed. With some new issues as well – blurred vision, bulging eyes, horseness, difficutly swallowing, and tenderness on the thyroid that was left. Was referred to an Endo that ran TSH receptor antibody, CRP, Cortisol Random, and ACTH, Plasma tests. Test results show I still had GD antibodies. Also had ultrasouond and was determined I have a small lymph node with possible micorclifiations and prominent color Doppler flow. TSH came back that medicine needed to be adjusted. At the time this was happening I was going through a very stressful time. New job, new boss, major life decisions. So meds were adjusted and I moved to another state. I now live in Maine. Very rural so my choices of Endos is limited and most don’t take new patients. The Endo I have in Maine was the one that let me know that I still have GD disease and also GD with the eyes. Endo said the only thing that can be done for GD was to give me steriods, but felt that would be worse than what I was experiencing. Had ultrasouond done end of September. Not even close to the ultrasound exam I had in Phoenix, AZ. This one was like a basic ultrasound 1/2 hour tops. The one I had in Phoenix was almost an hour. Endo came back that nothing has changed so do another ultrasound in 6 months. So why am I putting all this out there? I am having another GD episode. I didn’t realize it until yesterday. I have been having difficulty with my job performance, my partner is telling me he can tell I am off again. The episode is like the one last June. Very intense. I am hoping someone can give me some advice or experience on how to handle this. I am also wondering if I need to get second opinion on the nodule as the Endo in Phoenix felt it was something that needed to be addressed quickly. And how can I get control of these episodes. I hope to hear your ideas.

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