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Viewing 5 posts - 16 through 20 (of 20 total)
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  • DIY
    Participant
    Post count: 25
    Kimberly wrote:
    Wishing you all the best – I know our “thyroidectomy team” here will be a great support to you as you go through the process! :)

    Thank you Kimberly.

    DIY
    Participant
    Post count: 25
    SueAndHerZoo wrote:
    You sound like me…. I was so anxious and eager to have my TT I was counting the days weeks ahead of time. Everyone thought I was nuts to be so excited about an upcoming surgery.

    That was 13 weeks ago and I haven’t regretted it for a minute. Good luck to you and the medical team. Since you’ve done your research, I’m sure everything will be fine. :)
    Sue

    Thank you Sue, I agree with you, it is a relief to finally make a decision and go for it. Thank you for the encouragement and I’m glad you are doing well.

    DIY
    Participant
    Post count: 25

    barbra wrote:
    Hello DIY,

    Just want to wish you the very best for your surgery and hope that you have an easy, quick and uneventful recovery.
    My thoughts and prayers will be with you and your team.

    Hugs.

    Barbra.

    Thank you, I really appreciate your kindness and especially your prayers.

    DIY
    Participant
    Post count: 25
    jimmer1960 wrote:
    DIY can you tell me a little more about the shaking? is it from the thyroid making too much of the hormones or is it a muscle problem? it is almost like shivering. I took that RAI pill Sept. 11 and am going back to work in a week or two and do not want any intense shaking as it makes people at work wonder what is wrong. I can really relate to what you say and really need the shaking to stop. I am still trying to figure out how to ask questions and see the answers as I am not real computer savvy yet.

    I was shaking/trembling from day one. The day I went to the doctor I was sitting at a table in a meeting and simply raised my foot up onto my toe and my leg would shake. I got up and left and went to the doctor right then, that was in 2005. He first said I need to see a neuro but then said it could be my thyroid. He tested me and he was right my levels were very high. Got into endo 3 days later and Graves diagnosed. After Methimazole and Beta blockers for a couple weeks I felt some better but I’ve never totally lost the shaking. When I feel decent and levels are “normal” if I get into any kind of position where I’m stretched out holding something or standing and leaning over etc I will still tremble in my legs and arms. I’ve told the endo and GP about this since 2005 and it’s always been ignored. Finally, when I talked to the surgeon last week she did tell me that she thought this would improve if not go away. Now I don’t walk around shaking all the time and no one notices but I do, especially when I do anything I just stated above. I always thought why trade meds, why drop MMI and have to take Synthroid if I’m tolerating MMI. My endo never really pushed me to do anything but did suggest that I do and that it would be safer for me going forward and I should avoid the highs and lows like I had this summer. Considering the possibility of liver damage from MMI and heart etc from Graves I feel like it’s time to remove it and move on since remission is most likely no longer possible.

    DIY
    Participant
    Post count: 25
    SueAndHerZoo wrote:
    Hello DIY.

    I battled Graves Disease with Methimazole for about 7 years before I had a TT, just 10 weeks ago. So far I have not regretted the decision for a moment and have found myself wishing several times that I had done it sooner.

    Good luck, and keep us posted.
    Sue

    Thank you for responding, that’s encouraging to hear. I’m very happy for you.

Viewing 5 posts - 16 through 20 (of 20 total)