meegolf wrote:I’m new here but wanted to post about Graves Eye disease. My eyes have been active for about 14 months and I’ve had to have two surgeries. The first being muscle recession and the second four months later being an orbital decompression. I have had Graves for 24 years. At the beginning I had the RAI then synthroid for the last 24 years. Just feeling like a freak with these buggy eyes and having to function with an eye patch on one eye because its so severe in the left eye. Nobody ever told me about Graves eye until I had it.
Anyone elese going thru this? Maybe you can help or I can help?
Thanks
Shirley
Had my thyroid removed 2 years ago. 1 year later I started having bouts of double vision,and
swelling around my eyes. Every month I went to my family doctor thinking I had a sinus
infection. Now the double vision is permanent. MRI – MRA showed graves. The muscles behindmy eyes
were so swollen it almost hit the optical nerve,came close to losing my eye sight. Had to take steroids and have raditation treatments to reduce the muscles from swelling any more Surgeon can’t operate until I become inactive. Debbie
