[ddetrolio]

in reply to: Newly Diagnosed GD — Sad and Scared #1065862

Haute wrote:Thank you soo much!!

And Dave! I hope you get medicated soon too! How are you doing with your symptoms?

So glad you have come out here I have found it very helpful.
Symptoms are bothering me to be honest and I do not get to see the endo until next month ” title=”Sad” />
I see my regular doctor on Wednesday.

I am tired and just worn out and really need to get my sleep in order. In my case I have trouble falling asleep or go into a deep sleep then wake and cannot fall back.

I want to be my old self again and it is taking time. I do not have an outlet to relax and have to try to find one.

How many are using yoga to help?

Let’s hope the journey to feeling better starts soon.

Dave

[ddetrolio]

in reply to: Newly Diagnosed — How Sick were You All? #1065834

Chris I totally understand where you are now.

47 male and learned I had GD last March. Prior to it I was having trouble sleeping but did not know the issue until routine blood work at my GP (a place I had not been in some time) showed problems on two tests witht he TS and T4 levels.

My endo has not started me on medication yet but that has to change soon.

Sweating and dealing with temps is all too common to me now. The loss of enjoyment it things I did before is so major and there are foods I use to enjoy which no longer have appeal.

I have reduced dinner out by over 70% but since I am not a good cook I also am not always eating the best but trying like hell and working with people to do it.

It is difficult to get the mind and the body to work together while you are working to balance the levels I have learned and hope to have mine there soon.

But just know we are all going thru it and talking about in my case has helped.

I can be tired a lot (like tonight) or cranky or just not interested in talking. Other nights I have full energy boosts.

We can all get to the balance poing we need in time but getting there is not half the fun, but we will do it ” title=”Smile” />

[ddetrolio]

in reply to: Newly Diagnosed GD — Sad and Scared #1065853

You will find this board a great source!

I have not been put on any medication yet but hope too soon. I am 47 male and have had Graves for a year (at least I learned I had it a year ago) and have been reading up on the medication over the last few weeks since I have been bothered more by symptoms.

My readin has showed exercise and good diet balance will help us all with it but you need someone to help you along and of course check with the doctor before any major chnage in workout or activity.

I am working with someone to help me eat better along with the guidance of a friend who is very health oriented. I am down a few pounds over the year but in my case the sleep issue is more of a pain in the butt than anything.

As far as the skin goes I defer to the others on the board but I think that is a more common sign of Graves. In my case, my already thin hair is thinner ” title=”Sad” />

Keep asking questions, I should have done it sooner I think I would be in a different place now with my GD.

But being out here, it feels a bit better each time ” title=”Smile” />

Dave

[ddetrolio]

in reply to: Am I Not Doing Enought For My Graves? #1065950

Just what kind could I experience or look for?
Just more to add to the list, jeez learning about the disease is adding stress!

Thanks for all of the insights they have helped…Dave

snelsen wrote:Another issue to consider while being maintained in a slightly hyper state is an increased chance of cardiac complications. This increases with age, but it does not mean that you have to be OLD. Another topic to discuss with your doc.

[ddetrolio]

in reply to: Am I Not Doing Enought For My Graves? #1065944

Believe me, we’ve all been where you are. I know it’s frustrating, and harder still when you’re ill. I can tell you for a certainty that you will get better, healing will come ~ but it will be a long haul, no matter what your treatment choice.

It often seems I have been waiting too long…should have done more.

I saw your other post saying that you are afraid of Graves’ ~ let me put that a slightly different way. Be afraid of hyperthyroidism, but not Graves’ itself. You can get to the other side of Graves’, you will feel better, your body will heal, and you will have a new sense of what it means to be healthy.

Why is it so hard to get to this point? I just want to get to normal or close to it again. I am so frustrated.

Once again, I know this is tough. We all know this is tough. We’ll be here for you, because we do understand.

So glad I found you all.

Take heart, be kind to yourself

That is hard for me but I am trying.

[ddetrolio]

in reply to: Am I Not Doing Enought For My Graves? #1065943

Are the reports easy to understand? I am an IT guy but I understand Windows (well most of it, Bill Gates needs to share) but can the reports be easy to follow?

Thanks!

Bobbi wrote:You asked, Dave, about where to get your lab reports. Call your endocrinologist’s office and talk with the receptionist. Tell her that you want to keep copies of your lab reports and ask her to make you copies. Many of us try to track our progress by keeping a file of our lab reports. Our doctor’s typically will have their staff make copies for us upon request. If your endo’s policy is not to allow that, talk to your GP and authorize a transfer of the lab records to the GP (who should allow you copies of the reports).

[ddetrolio]

in reply to: Am I Not Doing Enought For My Graves? #1065942

I don’t mean to pry….wait who am I kidding… I mean I am "mamabear" for a reason! I do mean to pry since you did bring it up… You say you are friends with an exgirlfriend. Do you still love her and the friendship isn’t all you want? That could put a huge strain on your body and mind. I’m just sayin’ in order to heal from a romance, we tend to not be near the person after a breakup. Since you are still friends with her you might not have had time to heal from the actual romance due to the continued friendship. It might just take you thinking to yourself that you do love her and you still need to move on even if it’s just as friends… point is, is that you have now thought through it and that might take a big brick off of your shoulder because you might not have realized it. You never know the things that we keep on those shoulders of ours!!!

Yes and I do think the time has come to accept this did not turn into the relationship I was hoping for. She has a very busy life so I know we will be in touch but I also know I have to focus on me and my healing. We will not be able to do it together, but it does not mean I should not do it at all!

I wouldn’t continue the wait and see if your levels are out of range. Talk to your general dr. and see what he/she says and go from there. Personally I like to figure it out and fix it (i did meds). So chat with the dr. and see what they think of the endo. You can always go for a 2nd opinion. You don’t always have to like your 1st endo….. (yep I ditched my first one! 2nd was great although he retired! 3rd I ditched too, and 4th well I ditched her due to her staff). Thank goodness I’m in remission for all this time! My general dr. keeps me in check though and there is a new endo on my ins. so if need be I can see her. lol Always have a back up plan!

My meeting is a week form Wednesday with my GP and will start from there….2nd opinion seems to be in my future.
Thanks for all the good wishes ” title=”Very Happy” />

[ddetrolio]

in reply to: Am I Not Doing Enought For My Graves? #1065938

I have been thinking about a 2nd opinion but do not know for a starter another quality endo in the area. I am seeing my GP nect week to review the information he has from the last vist and review levels.

I just received a bill from the bllo d lab, can they give me results that would make sense?

Tanks to veryone, I really need to feel beetter soon this is draining.

Dave

[ddetrolio]

in reply to: Surgery Complete! #1066276

Hope you are feeling better soon sounds like everything went well. Being new out here & for having GD for over a year, I do not know what TT is but I suspect it is what I fear which is the surgery to remove. I still have not given that a lot of thought, it scares the hell out of me.

GD scares me now. I am happy you found a comfort in this procedure, I hope I can have your courage someday.

Dave

[ddetrolio]

in reply to: Am I Not Doing Enought For My Graves? #1065935

Thanks for the post I do appreciate it!
Me and my endo have discussed the drug treatment route & possible use of radiation on the thyroid.

To be honest when he confirmed I had Graves & hyperthyroidism he described it as me be a car on a road where the speed limit is 55, & I was at about 57. He has been monitoring me since winter 09 & I was told after the last vist my levels were holding & did bring up some of the concerns outlined in my message.

I want to just go back now & tell him to give me something, anything to get me back to whatever normal is suppose to be. I am not totally thrilled with the idea of radiation on the body.

Very glad here is a place to vent as well, because I am mad as hell I do not feel better & want to be back to myself soon. The lack of sleep has changed me as it would anyone. My visits to the endo are usually scheduled about six months apart, is this common?

Look forward to many discussions here.

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