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Viewing 15 posts - 1 through 15 (of 108 total)
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  • Darcy43
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    Post count: 125

    Hi Carito. Glad your numbers are improving. WBC scare is tough. Do you suffer from any sore throats? If you do, see your doctor. That could be a sign of infection. If not, maybe you are ok which is probably why your doctor didn’t alarm you about the range of your WBC. Sending positive vibes to you and hang in there. I hate Graves also..still struggling to find my sweet spot. I get labs done this weekend. I am praying they are stabilized or my endo will push RAI…Good luck.

    Darcy43
    Participant
    Post count: 125

    thanks beach

    I, too had severe emotional stress and trauma prior to being diagnosed. I had also just broken my ankle and had to have surgery…It is a bear..I am glad I am getting treatment, but it makes me wonder if this could have been diagnosed earlier…I guess I will never know…

    Darcy43
    Participant
    Post count: 125

    I hope everything goes well Shirley.

    Good luck to you.

    Darcy43
    Participant
    Post count: 125

    My Endo has always told me NOT to get the flu shot, nor should I be around anyone who has had the shot.

    I will say this…I never received the Flu shots…I moved back up north and decided two years ago to start getting the shot.

    A year later I was diagnosed with GD…I don’t know the correlation..but sometimes I wonder…antibodies..etc…

    makes me mad but to each his own…

    Darcy43
    Participant
    Post count: 125

    Thanks beach. I knew it was not the norm…it never happened before but this is the first year of Methimazole and I was just shocked. I will get the eye lubricants stat and have my endo check for TED. You never know. I just want to be as proactive as possible.

    Darcy43
    Participant
    Post count: 125

    Please search the forum for posts by adnere (Alexis).

    It is very informative and she is doing well.

    Darcy43
    Participant
    Post count: 125

    Thanks for the information Kimberly. I was so shocked because I swim a lot in that pool and this was the first time it happened. It was really painful and I didn’t know if it was a side affect from the mediation. I am going to try it again in a few days to see what happens and I will call the leasing agent to determine if they are using a different clorine, etc. agent. If it keeps up I will call my doc and in the meantime I am buying goggles because I cannot give up swimming. Low impact, soothing like a mom’s womb.

    Thanks again!

    Darcy43
    Participant
    Post count: 125

    Hi Alexis

    I wish I had some information for you but I do not because I haven’t had the surgery. I just wanted to post some support and I am glad you went to the doctor. It is good to see that the surgery is helping and it is possible that just like with Methimazole, your doctors have to find your sweet spot. I am glad you are on your way to feeling better and better but that you are also listening to your body. When things are out of sync it is not just “stress” as most like to tell us. Your body has gone through a ton of changes in the last few months. It is adjusting. I will keep you in my prayers for a smooth recovery.

    Darcy

    Darcy43
    Participant
    Post count: 125

    Bueno Sera and welcome! I love Italy (Florence and Assisi are my favs..going to the Amalfi Coast next year (fingers crossed).

    I, too, am on Methimazole and I also take Selenium. It is not a cure, but I read and reserched that it helps with certain symptoms. However, like any vitimine, mineral, etc. you must be careful with the dosage and make sure your doctor is aware (which is appears that they are). You are not supposed to take more than 200mg daily. That is what I have been told to take because we also get Selenium from cetain foods we eat (especailly Brazillian nuts).

    Good luck and happy healing.

    Darcy43
    Participant
    Post count: 125

    Thanks Kimberly

    i will. This is really out of character for me….

    Darcy43
    Participant
    Post count: 125

    Yes indeedy.

    Make sure your endo really explains what your labs mean. That will give you a better understanding.

    Also, do your own research too (this board is great and can help a lot to guide you to medical sites)

    Darcy43
    Participant
    Post count: 125

    BUT everyone reacts differently to the medicine. Some folks do not suffer any side affects at all. This was just my experience.

    Whatever you may experience, just keep track and discuss with your physician to receive proper care.

    I am not a doctor, I just suffer from Graves Disease….it sucks…

    Happy Monday and good luck with treatment.

    Darcy43
    Participant
    Post count: 125

    My reactions were extreme hair loss (though the doc claimed it wasn’t the Methi although hair loss is one of the affects listed), muscle cramps, weight gain, itching to name a few.

    Because my dose was finally reduced, those symptoms have disappeared, but now my endo wants to increase my dosage because she is just looking at my TSH level (but my T4 and T3 appears normal). I am at a dilema…

    Darcy43
    Participant
    Post count: 125

    Good Morning Caro

    Glad you are staying as positive as you can (and believe me, it is not easy) but you are not alone. We are all in this fight together. GD Nation…

    Yes, I stopped feeling so bummed out when my t4 was lower (at first it was at 7.77 and I thought I would losing my mind). It takes time. I am not at marathon status but I am glad to be able to do the little things and walking is a step. Take babysteps. If you can walk for 5 minutes, then that is better than before so do not feel bad. It took a long time to diagnose GD and the recovery process in long also, but many do recover or are able to live with it.

    hang in there and remember your friends care. Keep us posted. I am sure they will make the adjustment to locate your sweat spot. Welcome to Round II.

    Darcy

    Darcy43
    Participant
    Post count: 125

    Good Morning Caro

    Glad you are staying as positive as you can (and believe me, it is not easy) but you are not alone. We are all in this fight together. GD Nation…

    Yes, I stopped feeling so bummed out when my t4 was lower (at first it was at 7.77 and I thought I would losing my mind). It takes time. I am not at marathon status but I am glad to be able to do the little things and walking is a step. Take babysteps. If you can walk for 5 minutes, then that is better than before so do not feel bad. It took a long time to diagnose GD and the recovery process in long also, but many do recover or are able to live with it.

    hang in there and remember your friends care. Keep us posted. I am sure they will make the adjustment to locate your sweat spot. Welcome to Round II.

    Darcy

Viewing 15 posts - 1 through 15 (of 108 total)