[cynthia]

in reply to: only sleeping 2 to 4 hours night sooo tired #1065122

I know all say how they appreciate this website and I can’t agree more every morning I go to the site and see that I am not alone thanks to all for that feeling it is very important!!!!! slept better last night I find that plain old benadyrl works best for me do have lots of other choices but they leae me feeling worse and really don’t work anyway…..found out yesterday that my methazole side effects are problems with sleep so all be aware and take in the am you would have thought that the dr. would have told me that??????? turns out the nurse told me durning a call yesterday am……thanks agin cb

[cynthia]

in reply to: only sleeping 2 to 4 hours night sooo tired #1065119

need input when I wake up after a few hours of sleep restless full of dreams ugh!!! anyway feel like I have elctric buzz all over with shaking is that anything anyone else has experanced ???? I did sleep a little more this pm with out any med assist not really good sleep I hate night because I feel like I keep trying to sleep almost like work???? and feel like sh.. when I wake up/// thanks for input and posts cb

[cynthia]

in reply to: Out with one infection in with another… #1065010

Hi newily tx. for graves am looking forward to gettting "well enough" to have surgery..can I ask how were you treated in the past for graves???? why not surgery if not???? the fear of a replay of my horrid symptoms are my greatest nightmare at this point am so looking forward to surgery to get this damm thing out of me!!!! I hear that that will not make me well but even though am RN don’t really understand how that is so realize that I will be managed by throid medicines the rest of my life but at this point not wanting to live like I am now can’t sleep problems with just walking arround used to be so active now almost chained to my bed ugh!!!! don’t know if this irelavent to your situation but was intereted in your feeling about my thoughts thanks for your post and hope all gets better for ya soon thanks cb

[cynthia]

in reply to: surgery???? #1065086

called endo yesterday she increased my meth. to 20 mg am and 20 mg pm said this would stop my throid in i’s tracks she also feels that current nausea and loose stools are not reglated to hyperthroid this is a puzzle where all my diseases( diabetes and RA) are mixed together……still looking forward to my surgery when ever that will be….. hope to start on reglan for stomach self dx. ha ha willl see cb

[cynthia]

in reply to: Conflicting answers from two Dr.’s…. #1065041

I can understand your problem had similair problem not 2 dr. different but with the labs when I was truily sick couldn’t get to dr. for labs too sick to drive and when I did go my ths was high normal???? anyway, symptoms would come and go for the next few years ….. have RA and Diabetes 2 so was confused by the symptoms also on fental patch for pain so because of all my meds thought it might be meds to make it worse am RN and hate going to dr…..anyway get on treat ment ASAp now am in horrid shape and sick all the time also found out that some of the hyper symptoms don’t necessary have to present in correct way ….case in point I had severe cold INTOLLERANCE live in louisiana and love to go out side and cook in the sun , house air conditioner rarily goes below 77 degrees and don’t use car air even though it is 95 degrees outside….crazy ..huh!!!! when I finally gave in and went to endo requested blanket and froze she told me not usalL but is indeed a symptom. HOPE YOU GET FEELING BETTER QUICKILY CB

[cynthia]

in reply to: Meds/Remission #1065052

Meth is making me sooo sick to my stomach expect to be put on PTU???? what experances have you all ( from the south ha ha ) had with this drug…. soo over this sickness …..wht have you used for nausea???? thanks cb

[cynthia]

in reply to: only sleeping 2 to 4 hours night sooo tired #1065118

thanks for the post can relate to yor situation although don’t think this meth. is working for me so sick to my stomach only on 10 mg. once a day…called endo and she will call me back this am…..thanks cb

[cynthia]

in reply to: surgery???? #1065084

thanks all for info great my only problem is that i can’t wait until surgery I feel horrid sick to my stomach feel pregnant again ugh!!!!! called endo yeterday will call me back this am don’t think I can do this much longer so weak tired and sick can’t sleep how do you all do this????? am I a wimp!!!! am due to have my 4 grandsons next week and don’t know wha t I am going to do????? I get them once a MONTH for week , AT MY REQUEST, love being with them but so sick!!!! been in and out of bed for a month mostily in can’t stare at the walls anymore am so glad when daylight comes hope all are feeling great cb

[cynthia]

in reply to: only sleeping 2 to 4 hours night sooo tired #1065114

I thanks all for the feedback did sleep better this night propblems with waking up feeling ( hard to explAIN) LIKE MY SKIN WAS ELECTRIC hurts and hot not a nice feeling take inderal and it does get better but by then wide awake ugh just went back to bed and evenually to sleep seem to sleep about 2 to 3 hours at a time just like when I had new baby…….too soon for bld work just started meds last thurs if contine to feel bad will call endo to maybe raise dose am on methimazole 10 mg. day how does that dose compare to yours at the time????? how long did you have to wait to get the deed done ha ha (surgery)????? cb

[cynthia]

in reply to: Sick sick daughter with mental issues with Graves! #1065175

hope you and your daughter are doing bettter while reading your post wondered what your daughter did to improve sleep???? I am struggling with very little sleep and would appriciate any info thanks cb

[cynthia]

in reply to: surgery???? #1065079

thanks Kristi can you give me more info were you put out ???? did a specialist do surgery or did a general surgery dr. do it ???? not worried about pain just need to not feel so bad were you having problems sleeping????? thanks for your time cb

[cynthia]

in reply to: only sleeping 2 to 4 hours night sooo tired #1065112

how long cAN THIS NO SLEEP GO ON????I did take a napthis afternoon but really felt worse after that makes no sence.. at least my daughter came and helped clean up my mess y house yeterday was real sweet and greatily appreciated thankes kati it was more than just a cleaning but your caring that I soooo appreciate I sure hope none of my daughters have to go tru this kati has hypothroid and has struggles with it

[cynthia]

in reply to: surgery???? #1065077

you were right I did think I wouls be much better quickily don’t know how I will manage this to much longer feel like I have the flu most of the time sick to my stomach, can’t stand or walk with out feeling like I will fall over and most important can’t rest am sooo tired but can’t sleep or really rest!!!! is surgery quicker than RA???? thanks for your responce and time have a great day cb

[cynthia]

in reply to: only sleeping 2 to 4 hours night sooo tired #1065111

thanks for the input as you can see up at 330 am again ugh!!! needed cntact so thanks for yor time will try and be patient but am sooo bored usally paint, exercize very busy with grandkids and hate beeing so "weak" did go to the pool with 2 grandsons yesterday for a few hours loved it in the sun !!!!!! I am cold sensitive instead of the typical heat senative so love the 95 degree heat here!!!!hurts my feeling when my 2 1/2 year old grandson says swing me or play ball with him and i just can’t ,,,,feel like a failure I know tha tis stupid but can’t help my feelings no I have 5 grown daughters and lots of grown grandkids but no one to help!!! they are all very busy with work ect and don’t offer to help that is one of the reasons why it took me so long to get help when really sick couldn’t drive to the dr. office and when I went my labl were only high normal!!! anyway I will make it just take one day at a time ha h a hope you have a great day cb

[cynthia]

in reply to: only sleeping 2 to 4 hours night sooo tired #1065109

thanks for replay helps to not feel alone did xsleep 5 houirs last night new record for me yea!!!! used ambein 10 still tired but hope to feel less tired today am from baton rouge, Louisiana anyone out there near me???? would love to talk???? will look for support group this week I am a master prepared psych rn so knowledge is great but feelings more important at this point!!!!! am so lucky to have good dr.s but my endo is so hard to get to see!!! she is over welmed with pat. wonder why so few endos ????? big need!!!! am on medicare disability so not sure if my insurance will let me do surgery instead of RAD. ????? want this thing out of me !!!!! feel like it is a can cer Ii know this is CRAZY talk but so at my wits end can’t do much more not suidical but very unhappy!!!! I am over achiever and can’t stand to be so diabilitated…… lady who answered me can you tell me about your self see that you are on line with graves often and xsound like you hve been arround the blk. ha ha thanks I need to talk not a computer freak usally don
‘t get on but this am fiorst thing I wanted to do is check and see if anyone had answered me thanks soooo much hope you are well cb

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