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Viewing 15 posts - 46 through 60 (of 75 total)
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  • cynthia
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    Post count: 82

    thanks all for great info will of course follow up with endo but she is very concertative I am not had throid study mon. will see results on thurs and go from there thanks again cb

    cynthia
    Participant
    Post count: 82

    how many mg of carnitine?????cb

    cynthia
    Participant
    Post count: 82

    loved the info on your blog I am medical person and am looking for web info preferally medical site on the muscle wasting assocated with graves ie weakness also fatique as this is a hugh problem with me….would appreciate any direction you might find thaks cb

    cynthia
    Participant
    Post count: 82
    in reply to: exercise? #1064799

    Hi been on meth for about a month my leg muscles have been weakned dramatically been told it is a calcium problem in the large muscles of the of the legs and arms. have pain and extreme inability to walk or stand all tell me to be patient and not exercize muscles have to rest ???? very hard not to push myself also read to take 1500 mg of calcium a day to try and reestablish calcium levels in the muscle have had problems finding medical referances becausse those sites can charge to use!!! I need assistance in finding good medical based info am mastered prepared RN so can get good info from those sites am hoping there are answers don’t know how long I can deal with this am in bed most of the time and hate it……love to walk ride my bike ect. also am a artist but haven’t touched a canvas in monthes too fatiqued to care about much sorry you are having this issue good luck cb

    cynthia
    Participant
    Post count: 82

    how do I get to it??????cb

    cynthia
    Participant
    Post count: 82
    in reply to: I’m pregnant! #1064913

    congrats babies are all ways great I have 5 grown daughters and would have 17 if I could have the symptoms are similair ugh!!!! that is what I told my endo at first like being pregnant with nausea ect… hopefully this will pas don’t know how your disease will effect baby / pregnacy but do know our kids have a greater chance of having throid problems because there is a family history issue doesn’t mean will ???? my youngest daughter has hypothroid and at times has a hard time with it ugh don’t really know which is worse!!!!! don’t worry because not helpfull just enjoy your blessing do you want a boy or a girl???? my self love little boys ( most of my grandkids are boys) and girls can be ruff durning teenage hood they all gave me a ride for my money but lived trough it have a great day cb

    cynthia
    Participant
    Post count: 82
    in reply to: Overwhelmed #1064919

    I understand all to well I love my general practioner ( my long term docter) but he tested my blood weeks after my "hyper attacks" because I was so sick could not get to the dr. my tsh was high normal so within range when I finally get the labs a little sooner the graves showed it self…..it talkes up to 3 monthes to see a endo that is way to long and most gp will not threat hyperthroid but just refer I understand thier issues being a RN and working within the system but still don’t like it It is rediculous that you can’t get to a endo dr.faster than that now I will say I lucked out my dr. (gp) called and got me a sooner apt with endo all who have that problem ask your dr. for help with apts. after you get in should be no problem to call or see endo when necessary I am from baton rouge, Louisiana and have to say that dr. hinkle my endo is great wish she could make me better faster but am trying to be patient not easy for me I am a spoiled brat ha ha and want all back to normal now really just want my surgery go back on the 22nd of this month new labs and am going to push for the surgery….I go t o this site every am and it has been a big big blessing for me to vent and ask others how to manage this hell!!!!!!! I want to thank the special people who always answer me and try to help you are all special I expect when I get better will fall out of this site but you have stayed and only want to help!!!!! being a psych nuse all my life know how special you are and know you will be blessed… sorry about the sticky sweet stuff must be gettting soft ha ha keep you head up it will get better someday hopefully cb

    cynthia
    Participant
    Post count: 82
    in reply to: Help #1064939

    I am having the same problem with weakness can hardily walk or stand very hard on a active person I force myself to get out of bed and try to walk go with grandkids ect but end up using the little handicap carts and asking all to help me with any lifting ect. this is not me was walking 3 miles a day and biking ect. also am hurting all over all tell me that this more hypo than hyper but this has been my issue all along…. am wondering how long this will last my legs feel like rubber sorry to hear you are also having a issue hope all get better soon this really sucks ha ha anyway try and keep your chin up cb

    cynthia
    Participant
    Post count: 82

    I glad … sleep is sooo important too bad all don’t know worth a try ????? hopefully will work for others cb

    cynthia
    Participant
    Post count: 82

    I am sooo happy been sleeping restilessily but sleep most of the night this began when I stopped taking my meds in the after noon so if on methazole try in the am in one dose if oked by your dr. working for me DON’T DO ANYTHING WITHOUT DR. OK thanks cb

    cynthia
    Participant
    Post count: 82
    in reply to: ANA #1064931

    because I have RA I have done some research on the relationsip between the auroimune diseases much disagreement but some basis to relationship between them better get to a good specialist to see what is up with ya I am currentily dealing with ra and graves as well as diabetes what a mess anyway don’t wait good luck cb

    cynthia
    Participant
    Post count: 82
    in reply to: Help #1064936

    sorry to hear you are hyper throid ugh!!!!! plese don’t make the big mistake I did and wait for treatment it will just get worse what are your symptoms???? I was dx 3 years ago but choose to wait until a few weeks ago for treatment big mistake I really hated the idea of meds ect now waiting for my body to get better so I can get surgery…..best of luck cb

    cynthia
    Participant
    Post count: 82
    in reply to: methizamole? #1064975

    I am on methazole 20 mg a day for 2 weeks it can be hard to take …in refrence to the side effects.. liver damage is big one but can be monitered by labs….. my issue is that it take so long to get to see a endo I am lucky to have a great one she sees me in a day if I am having problems she books a day and then adds on to the end of the day with sicker needer pt. she is great but there is far too few endos arround don’t really understand ????? they are needed!!!!!! I also want surgery I am a lot older than you but even if I was yunger would opt for surgery can always take trhoid not that big of a deal in comparision to living like this!!!!!!! also methazole is the safest drug arround or at least this is what I have been told……. good luck cb

    cynthia
    Participant
    Post count: 82

    I am waiting for surgery was told only when graves in control am on methazole for a few weeks tring to be patient really want to ripe it out good luck cb

    cynthia
    Participant
    Post count: 82

    sorry if the infomation about methamazole was incorrect about metamazole causing problems with sleep I have found that when I take my 20 mg dose in the earily am I have been sleeping alittle better the problem with drug side effects are that they can be oppisite than normal documented side effects so I quess we all have to try and see how it works for me am sleeping a little better up frequentily and feel as if sleep is hard work…… my real problem is how I feel when I get up ugh!!!!! it takes me about 30 min. until I really feel safe to walk???? is that normal???? take 30 mg propanaol when I wake up and then I feel better still shaky ……. also my body hurts is that normal???? thanks for help cb

Viewing 15 posts - 46 through 60 (of 75 total)