[cynthia]

in reply to: DOWN #1064077

can I relate!!!! I have had graves for years but didn’t start treatment until about 5 months ago. I had hard time with anti graves meds allergic problems about 6 weeks ago had throid surgery it was a great answer for me … been treated with synthroid and last week finally got to feel normal again and started my regular activities again slowly ha ha anyway was so depressed and apathtic for a time before and after surgery was feeling hopeless and thought I might never get back to normal again everyone told me to be patient but that is very hard when you are type A personality like me but I am sooo happy to be better and back to my life!!!!! was practically in bed for 4 monthes ugh!!!! Try and keep your head up and look towards the time when you will regain your health…god bless and thanks all on the web page for their help…

[cynthia]

in reply to: ANA test results came back positive #1064096

I have RA and while doing reasearch found out that if you have one autoimune disease you have a much higher likeilyhood of getting another … lupus is not anything to fool arround with so get to the dr. asap I wish you all the luck I know it is difficult to have multiple diseases can be difficult to understand whitch one is causing what???? bless ya

[cynthia]

in reply to: Any feed back on NMD’s? #1064120

good morning I can totally understand your feelings I had a horrid time at first so weak couldn’t stand or walk a few feet was very difficult to deal with am type a personality and don’t take bed rest well went on both antithroid drugs had problems with both muscle cramps with meth…. and itching with ptu pushed hard for surgery and when I finally had the surgery felt better the day after which might have a lot to do with being off the anti throid meds… anyway try hard and be patient because it will be a while before you feel much better take one day a at a time… anyway had my surgery on 8/9 and am getting better slowily still weak and have a hard time with any tpye of activity my daughters are always telling me to take it easy but am sooo sick of this weakness and limitations it is difficult but it isn’t like we really have a choice so might as well try and rest and take care of ourselfs I wish you all the luck with what ever treatment you decied to have

[cynthia]

in reply to: Remission? What do you think? #1064158

question why would you not get "final" not really !!! treatment RAI or surgery??? don’t let fear stop ya….good luck

[cynthia]

in reply to: what part of graves do we keep? #1064150

this is a great question I think all of had that question in our mind but never thought to actually ask!!!! I am wondering if my anti rumatoid meds will effect at all??? probablily not !!! I am wondering , just a random thought since I get 2 immune diseases ( ra and graves) what else is waiting out there boy do I sound paranoid….. just a random thought had surgery about one month ago and am finally starting to get my act together still tired and now have pain from "bad" back…and my ra….. am starting a easy exercize plan to atrenghten my muscles it will be slow have been in bed a lot for the last 4 monthes….ugh!!! but I can see the light finally!!!! depression has a lot to do with all of our trips though graves it is hard to keep a happy thought when all is out of control and with the physical problems…. surgery was actually great for me but know the getting "well" process will be slow….bless all and hope we can all share and benfit from this web site by the way how old is this site???? thanks

[cynthia]

in reply to: soo depressed about effects of gd #1064207

am feeling better emotionally made myself go to the art studio today had a great time with my other artist friends got a great complement on my art from a great artist I haven’t seem in a while she used to be one of my art teacher at the studio all are very supportive offering free lessions to me …… am going to start painting again even if I have to make myself get started also went for a short walk only 1 1/2 blocks but will try 2 blocks today spend time with my youngest grandson will be 3 he loves me unconditinally and gives me lots of hugs and kisses which older people need and don’t always get!!!! am sooo looking forward to trip will drive to new orleans tomorrow short drive then my daughter will drive the rest of the way no pressure there …. will lay on the beach , float in the pool and read my books ha h a money is always a issue but will just let it go to god and trust all will work out am working on finiancial resourses bless you all for your help to all of and hopefully you will be blessed by all your time and good works thanks

[cynthia]

in reply to: scarred #1064279

have question??? just had throidectomy about 2 weeks ago wonderered how long do I need to be watcing for s/s of TED????? currentily have no eye problems thanks god thanks

[cynthia]

in reply to: Could use some advice or good thoughts #1064374

good morning I am also a relative newbe to this site however have been on it everyday since I got really sick played with graves for years mostily ignoring it big mistake anyway… am on the way to "wellness" it is a slow process and hard to tolerate but will happen with treatment I had surgery and love it felt better the day after surgery this is proablily not normal but that is what hapened to me good luck

[cynthia]

in reply to: On MMI and I am concerned I am going Hypo #1064297

the balance of mmi is hard and doesn’t usally respond very rapidily however your body can be crazy ..labs are not the end all to what is going on with ya!!! listen to your body I had surgery 2 mondays ago and started on .88 synthroid 3 days later had serious heart rate and b/p changed ended up in the hospital ( labs normal but tackacardic) so listen to your body and remmeber you are the customer with your dr. complain if need be aout lack of responce good luck

[cynthia]

in reply to: Hyper again-What should I do? #1064351

thanks shirley will take your advice was a little upset yesterday when I checked about my bills from the hospital I didn
‘t know that the hospital can charge you outpt when you spend the night in the hospital for observaton this means a lots more charges I will be responciable for I called dr. admitting me and the hospital to see if I can get this changed but all who are ignorant like me ha ha need to have a heads up especially if on medicare charges can be a lot higher……and when you don’t get much income can be a abig challenge have a great day

[cynthia]

in reply to: after surgery #1064364

thanks for the great pep talk am sooo looking forward to "chasing my grandkids" ha ha the girls have offered to pay for the tests yes insurance paid the great majority of the cost but just the co pays are hard for me also I am so tired of dr.’s visits talked with my rn daughters and decided to start a log of pulse and b/p in the am for a period of weeks if I have any more symptoms will contact cardiologist am a little nervious to start synthroid but will follow endo recomendations thanks all really appreciate your posts

[cynthia]

in reply to: Hyper again-What should I do? #1064349

shirily am very interested in your post did you have a total throidectomy????? if so how is it possiable to not take a throid supplement???? I am newily operated on and had very bad reaction to starting synthroid see my post after surgery anyway am scared to start synthroid agin am waiting 1 week before starting (as per my endo) after reaction will see??? thanks for your next post with info ….by the way my endo told me that even if you have a total throidectomy some tissue remains secondardy to the parathroid glands presance surgeion must be creful to not damage these glands therefore can leave very small amout of tissue from throid???? hope you all are better can’t realize how horrid having graves is as a teenager so sorry for all the young people with it ugh!!!!!

[cynthia]

in reply to: after surgery #1064362

hi I am back here is my story ha ha anyway was to call my endo at 8 am monday but the nurse called me at 730am to talk about someting else….. I told her about my rapid heart beat chest pain SOB ect she told me to come in now when endo saw me my resting heart was 200bpm she freaked sent me to er for tests ect for rule out blood clot and cariac problems was in er 6 hours with plenty of attention all got beter after lopresser iv they wanted to keep me overnight for observation my girls insisted so I stayed they did cat scan bld tests ekg ect anyway labs showed normal thrroid well with in limits all other was good …was discharged in the am with lopresser meds endo stated to stop synthroid ( no kidding) for a week or 2 and start agin if get problems cut in half……cardio wants more tests echo, halter mointer stress tests but am so broke can’t !!!! really think it is my throid all though think it is freaky….resting pulse now 77bpm and b/p 117/78 never had such good vitials ….ha ha will go to cardio when I can ume nuless have problems again thanks for the posts nice to know you care

[cynthia]

in reply to: after surgery #1064357

sorry typo hyper not hypo…

[cynthia]

in reply to: after surgery #1064356

will call endo this am am having shortness of breath unable to stand or walk tighness of chest fast pulse all signs of hypo how is this possiable it is a nightmare for sure thanks

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