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Viewing 7 posts - 46 through 52 (of 52 total)
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  • connypie
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    Post count: 68

    hey raspberry, i too have trouble explaining things.cant remember jokes ect ect. and im so freaking sensitive.you look at me wrong and i have to work at not crying on a bad day.i have issues with noise,i cant shut it out so i cant concentrate.and you know that person with that irritating voice i cant shut them out,they boom in my head,like somebody has turned up the volume.i dont drive either because of my anxiety.ive had 4 extremely stressful years with medical issues in the family,so maybe thats whats making me feel bad.
    maybe we are the forerunners for the discovery of a new symptom of GD(follicle hangover) lol

    connypie
    Participant
    Post count: 68
    in reply to: sore hair? #1182522

    hi raspberry,im sorry to say,you are not alone in this.my hair has hurt too, off and on over the years.i never mentioned it to the doctors,because i thought they were going to call me a hypochondriac.and mental.lol its similar to a hangover for me,its almost like i can feel every single hair on my head.and it feels sorta like somebody rubbed sandpaper over my scalp.Isnt Life with Graves Disease great!!! Those are sarcastic Exclamation points.

    connypie
    Participant
    Post count: 68

    hi guys, i finally got a hold of my labs for the last year.JANUARY 2013 TSH 0.296—-MARCH 2013 TSH 1.35


    OCTOBER 2013 TSH 1.01—-JANUARY 2014 TSH 1.43 and T4 12.8 .apparently he only tested my TSH levels untill this last test.ive had 2 adjustments in my levo,both lowered.

    connypie
    Participant
    Post count: 68

    hi kimberley,i finally found a endo and got a appointment for the middle of july.had to call my lab company to get all my labreports,since ive had different doctors run labwork.i dont think my dr even did labwork after he changed my levo dose.im feeling better but the muscle weakness is not getting better and i have not gotten back all of my cognitive functions.

    connypie
    Participant
    Post count: 68

    hi Kimberly,that article on the t4 and t3 combination was very helpful.it explained a lot of the symptoms ive been having.diagnosed at 28.radiation at 28.levothyroxine since then.eye involvement since 28.i was basically told to live with it or to not be so sensitive.i had a spike last fall?and i almost went for mental help,it was so bad.so now im looking for a new endo,to see if maybe the combo t4 and t3 would help me.oh sorry im 47.so ive had graves for a while. thanks for the info.will let you know if it works,if i remember to write.bad memory,part of the problem.

    connypie
    Participant
    Post count: 68

    Thanks for your answer snelsen.i had breast cancer 4 years ago.but the pain is longer then that.orthopedist said very little arthritis,all soft tissue and muscle involvement.shoots me up with cortizone and tells me to do physical therapy.the problem is as soon as i feel better and lay off the excercise,the pain comes back.and the weakness.i had a dexoscan 4 years ago,it was fine.went to a rheumothologist ,got tested for ra, sjorgens,ect ect everything negative.then she started using the word fybromialgia and i said no.i know somebody who uses that word as a way of getting attention(hypocondriac).so i just dont believe its a real disease.ive even been thinking about trying to get partial disability,because we need the money from my paycheck and i cant just quit.but i dont think graves qualifies for disability.i guess i have to get the lab results from my primary.

    connypie
    Participant
    Post count: 68

    sorry to be such an airhead, but how the heck do you post a post? connypie

Viewing 7 posts - 46 through 52 (of 52 total)