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  • Conchita_Maria
    Participant
    January 21, 2009 at 10:32 pm
    Post count: 3
    in reply to: What took me so long? #1074505

    That is so surprising that a surgeon doesn’t think you should have surgery. Is he an older doctor? Maybe he’s just not comfortable doing them himself? It is a tricky procedure, so if you wanted to have the surgery you definitely want to go to someone who does them a lot.

    I was also told by my endo that RAI is the usual treatment for Graves, but I read that surgery is more common than RAI in Europe. It is confusing, so you should do what you feel is right for you. Don’t let anyone pressure you into anything.

    Conchita_Maria
    Participant
    January 21, 2009 at 10:08 pm
    Post count: 3
    in reply to: ? before I go to the Dr on Monday #1074304

    I was on PTU for 2.5 years without any real side effects until just recently. I was on the medication for longer than usual because of my pregnancy. My white blood cell & neutrophil counts were low, so I had to stop. Now I am looking at surgery.

    I know someone who did get skin rashes from PTU, but she was on a very high dose initially. Maybe I was just lucky, but it may be worth a try if you had a hard time with the other drug.

    Conchita_Maria
    Participant
    January 15, 2009 at 10:55 pm
    Post count: 3
    in reply to: Choosing Thyroidectomy on Purpose #1075740

    Hello – I am new to this website. I was diagnosed with Graves about 2.5 years ago. I had been on PTU until last week when my white blood cell & neutrophil counts were too low to safely remain on the medication. I’ve been lucky & have been able to keep most symptoms under control. I used PTU throughout my pregnancy & breastfeeding without problems. I just had to be monitored closely & went up/down with the dosage.

    I’m not ready to have another baby just yet. But since I don’t want to have to wait a year to even start trying (or suddenly stop nursing), I am also looking at the surgical option vice radioactive iodine. Plus the thought of "radioactive" made me nervous – even though my endocrinologist insisted it was totally safe. In addition, my husband is an ophthalmology resident & was very concerned about the increased risk of Graves eye disease with RAI.

    I have found this bulletin board so helpful, & I think I am making the right choice for me. Thanks to everyone for sharing your stories.

    Maria

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