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  • Claire95
    Participant
    Post count: 12
    in reply to: 2nd dose of RAI #1184828

    Thanks Susan. I got a 2nd opinion last week and I will be staying on the 2.5 mgs. of Tapazole for another 6 months – no RAI just yet. I’m happy with this decision but a little nervous about becoming hyper again.

    Claire95
    Participant
    Post count: 12

    Hi,

    I was diagnosed with Graves nearly nine years ago. I was on Tapazole for awhile and then had a five year remission. I relapsed and went back on Tapazole and was in remission for about a year. I relapsed again in the fall and had RAI in February. I had a very low dose in hopes of becoming euthyroid. At this point, I have no regrets. My thyroid levels are in the normal range. My Dr. is slowly decreasing my dosage of Tapazole. I have felt fine through the whole process and I have had no change in my weight. Overall, I’m glad to have it behind me. :)

    Claire95
    Participant
    Post count: 12

    I was in remission for five years after about nine months on Tapazole. When I became hyperthyroid again, my endo wanted to first put me on Tapazole to stabilize my levels, and then do RAI. I ended up not having RAI as my endo reconsidered and thought I may have a chance of another remission because of the length of my first remission. I plan to have RAI if I relapse again. Right now I am hypothyroid and my dosage of Tapazole was just decreased to 5 mg daily. The Dr. I saw after my uptake scan said my endo. may not write me a prescription for Tapazole. I’m glad that wasn’t the case. :)

    Claire95
    Participant
    Post count: 12

    I am on propranolol and I haven’t had a problem with it. The first time I took it I got very sleepy but I’ve been fine since then.

    Claire95
    Participant
    Post count: 12

    I had a reoccurance after five years of remission. I’m not entirely sure what caused it – the first time I was hyperthyroid was right after my daughter was born. I’m not sure what my initial dosage of Tapazole was. No problems with insomnia.

    Claire95
    Participant
    Post count: 12

    I was on Tapazole for 7-8 months. The dosage was slowly decreased because I became hypo fairly quickly. After I stopped taking Tapazole I was in remission for five years.

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