[christinevilla]

in reply to: Has anyone heard of this? #1181791

Hi Alexmcdonald, I am acutally going through the same thing as you; normal labs with a high uptake and scan. My story is long, I will try to shorten it as best I can. I had a baby in January of 2012, looking back my symptoms started about a week before he was born. After losing 57 pounds in 4 months, experiencing crazy bouts of diarrhea, increased heart rate, heat intolerance and the inability to care for my newborn and 3 year old I was diagnosed with graves disease and hashimotos. My endo left her practice this past June and I got a copy of my records to take to the new endo in October. My graves antibodies were negative, she stated so in my records, why she gave the diagnosis . . . I don’t know. My uptake was also low; 4% at 4 hours and 12% at 24. I took this info to my PCP and he said stop all PTU, there is no reason for you to be on it. At that time I had gained almost 15 pounds since April and my labs were reading hypo. Fast forward to Halloween, my appointment with my new endo. He also doesn’t think I have graves’, but he does believe I have hashimoto’s due to a high TPO-73. He told me to stop taking my propranolol which at the time was 10mg in the morning and 10mg before bed. My hyper symptoms started again around the 13th of November. I called and he kidn of wrote me off, so not happy with him. So he ordered another RAUI scan last week and this is the report:

The obtained planar images show homogeneous diffuse activity throughout the thyroid gland with no discrete hot or cold nodules identified. No pyramidal lobe uptake is seen.

Thyroid update values are 45.9% and 65.5% at 6 and 24 hours respectively, after administration of 317 microcuries of 1-123 administered via oral capsule. Normal percent uptake ranges for these time periods are 5-15% adn 15-40% respectively.

Impression:
1. Homogeneous activity throughout the thyroid gland with no discrete hot or cold nodule.
2. Elevated thyroid uptake valuse as described above.

The labs I had drawn on 12/3/2013, he did not order a FT3:
TSH – 1.24 (.35-4.01)
FT4 – .98 (.61-1.37)

I have been feeling better since I started taking my propranolol again, 20mg in the morning, 10mg mid afternoon and 10mg at bedtime. Wondering if maybe the FT3 was creeping up and causing the symptoms and now the propranolol is taking them back down again. So confused, I have an appointment with a third endo on January 3 for another opinion, hope I get some concrete answers soon. I am also wearing a 30 day heart monitor to see if there is another cause for the palpitations and increased heart rate. I believe it is thyroid related, but my endo doesn’t seem to think so. Thankful I have that appointment for a third opinion.

I hope you find some answers, and I pray that you are feeling better soon. If I find out the cause of this I will be sure to post and let you know. I would definitely look into getting a 3rd opinion, I know you said you are running out of money but maybe there is a doctor out there who will accept you as a patient and accept monthly payments for your visits.

Blessings

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