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  • charlene
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    Post count: 2

    Thank you for writing!! I too have joint and muscle pain w extreme heaviness at times. I also have had tendonitis im my hands and superficial phlebitis in fingers/hands and bilateral pre tibial myxedema. I’m not sure I can always relate feeling bad to levels.

    charlene
    Participant
    Post count: 2

    Debbie – I was glad to read your post. I, too, have TED, had the decompression, then eyelid surgery. I seem to be having a second round of Graves’. It was settled down and now I have the symptoms all over again including new edema around my eyes and right eye protruding. I didn’t know that could happen. Like you, am frustrated but glad to be in company of those who recognize how it affects a person. Charlene

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