Debbie – I was glad to read your post. I, too, have TED, had the decompression, then eyelid surgery. I seem to be having a second round of Graves’. It was settled down and now I have the symptoms all over again including new edema around my eyes and right eye protruding. I didn’t know that could happen. Like you, am frustrated but glad to be in company of those who recognize how it affects a person. Charlene