[ccorhn]

in reply to: Post RAI – TSH levels too low #1183723

Thanks flora!!
Cindy

[ccorhn]

in reply to: Post RAI – TSH levels too low #1183721

Yes, Kimberly he did want to not do RAI, but since he wouldn’t treat me with meds, I saw it as the only option. He had agreed finally under an ophthalmologist guidance to the RAI, since I refused surgery – period. As of noon today I had good news… I now have TSH showing up in my blood work!!! So exciting! He now has to eat his words on making my life so horrible the past 2 days – fully expecting to go thru the RAI again. I have a normal TSH amount in my blood test (.3) from 2 days ago. He actually called to apologize. So… I am in remission at the present and still probably will go hypo – so we will watch numbers closely for the next couple months to see about the hypo. The answer to the question I initially posted is Yes, the TSH can still come up even almost a year after RAI treatment. This is the first good news I’ve had in 2 years!! Thanks for all your support through the bad times!!

[ccorhn]

in reply to: Post RAI – TSH levels too low #1183718

Had an appointment with my endo yesterday and got some answers finally. I’m not sure it’s the correct answers, but I have answers nonetheless! The reason for not wanting to leave me with no TSH is because if your pituitary gland (TSH producer) isn’t telling your thyroid to produce the T3 and T4 – then something else in my body is telling it to – namely the TSI antibody (the Grave’s disease in my system). The way he explained it – the thyroid doesn’t produce the T3/4 on it’s own without being told to. So, if my TSH is 0 in a normal body the T3 and T4 should actually also be 0. My numbers are “normal” which tells him that the Grave’s is back active in my system telling what’s left of my thyroid to produce hormones. The reason it is so dangerous is because if you were to need to have another test that requires iodine dye, the iodine can send you into a thyroid storm. I have put off the RAI again until November, but I am back taking methimazole 5mg a day to see if my TSH comes up. He says even though I’m not “toxic” at this point, that he still believes that the RAI didn’t work the first time and also told me he wouldn’t be “fooling around” with the next dose of RAI – it would be 20 mc dose.

[ccorhn]

in reply to: Post RAI – TSH levels too low #1183717

Thanks Kimberly. I am def going for a 2nd opinion. I will meet with the endo again before I do this just to make sure my numbers are staying steady. Thanks for the prompt reply!!

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