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in reply to: Are We Contagious freaks? #1176922
I’ve heard of others having that reaction before! My experience so far is that it’s just not worth trying to explain it because it’s too complicated. I’ll get “well you look okay” like they can’t comprehend I’m actually dealing with anything serious. Or they will compare to hypothyroid/hashimoto’s which is certainly significant but not the same deal as Graves’. These days I just say I have significant health issues and leave it to their imagination.
in reply to: For those of you who have used Cytomel #1176889Hi Alexis, I’ve read that because of Cytomel’s very short half-life it must be taken frequently throughout the day. This is hard for many and so long-acting T3 does exist and can be gotten through compounding pharmacies. You can also use compounding pharmacies to get those smaller doses like that eighth of a pill dose. I keep track of all this stuff because one day I might need it! I hope you come up with an option that works for you.
in reply to: Hyper Hormone Secretions? anyone know? #1176867Wow, sorry to hear things are so intense. I don’t know much about menopause, but I wonder how did your endo determine you are in remission? Were your antibodies (TSI or TRab) tested? Whatever is gong on March is a long way off – is there another doc you could see in the meantime like maybe an internist?
in reply to: Going in Circles! #1176839Vanillasky, does the doc have a plan for when your thyroid levels will be checked again – I hope soon? A big dose reduction in tapazole makes sense – my levels last labs are almost exactly the same as yours and my endo reduced my methimazole by one quarter with retest in a month – but to take you off it completely might be asking for some trouble.
Another avenue to try for menopause is with a naturopath – you’d have to be careful to work with your endo to make sure the herbs didn’t affect your thyroid but it’s worth a shot. I’ve heard really good things about the herbs vitex (aka chasteberry) and black cohosh.
in reply to: I’m ready to take the bridge! #1176730Hi Karen, I just sent you a PM with some info. Wishing you well, I hope all this can be sorted soon for you!
in reply to: I’m ready to take the bridge! #1176721((((Karen)))) so sorry you are going through this. Just remember even though it feels impossible and awful that your thyroid hormones are fooling your brain – there’s no way that suddenly being taken off tapazole won’t cause a spike. This will affect your emotions and your thinking so please try to remember there’s a funhouse mirror reflecting reality back at you right now, don’t trust it. I hope you can get help soon and agree with everyone else, please call 911 if it’s the only way. We are here for you.
So sorry to hear about this trouble Gatorgirly! I hope that things can resolve soon for you. It’s bad when your condition makes you want to drink but you can’t! Many times lately I’ve felt like drinking but taking liver toxic drugs makes me think twice…
in reply to: Unsure about response from Endo re: Eye problems #1176627WWWI2 wrote:I just feel like I don’t have the capacity to deal with this right now. This is my 3rd disease diagnosis in 4 years (not counting the ruptured appendix in July) I’m scared, I’m exhausted and I’m running out of organs.HUGS to you! While I’m not running out of organs I can relate to feeling like it’s all too much. Like the level of smartness and assertiveness required of me to avoid the pitfalls may just be too much given how I feel most of the time. Still it sounds like you are doing an awesome job learning about GD and exploring your options, I don’t think you’ll get railroaded and I won’t be either. Stay strong sister!
in reply to: Well, here goes! #1173566AZGravesGuy, sorry to hear things flared up again but it’s good to know there was a reason – just too soon to reduce the meds or skip any. You could always give it more time. I’ve read that sometimes it is harder to determine RAI dosing for men because their thyroids are thicker and sometimes a second treatment is needed. I find it helpful to set reminders on my cell phone to beep at me so I remember my meds. This brain scan is the probably just a formality though since you already have an explanation for what is happening. Still I know it’s scary to have a test on your brain, the mind can go many places.
VanIsleGal, sorry to hear of your troubles too – I hope the infection can clear soon!
in reply to: Thyroid hormone yo-yo #1176611One thing that plays into this is that results shouldn’t be thought of as just “normal”. One can have a normal FT4 meaning it is in the range but near the bottom of the range and feel bad because they are nearing hypo territory or near the top of the range and feel bad because they are entering hyper territory. And where people feel best within the normal range varies individually also. You might find it useful to get copies of all your labs and ask your endo the details of what “normal” means for your 1/25 labs.
in reply to: Well, here goes! #1173560What a bummer! I’m sorry you are appearing to have a resurgence. I like how you put it chase the ATD dragon….that’s what I’m doing and let me tell ya it’s one crafty dragon. But it gives options and buys time. I hope the news is good for you tomorrow.
in reply to: New problems with eyes #1175179Hi Laura, it sounds like you are going through a really intense time. You deserve to have your doctors explain what’s going on so you understand and can make decisions. Has your endo shared your lab values with you? Did your ophthalmologist explain why you need surgery so urgently? You might want to start a new thread about your situation so the most others can see it more easily. There are a few people on this board who have had the eye surgeries can advise way better than me. Please take care and remember you have the right to be informed!
in reply to: my dosing style experiments #1176561Oh and you’ll know I’ve really found the perfect dosing scheme and dose when I feel well enough to be out partying on a Saturday night instead of posting on the internet!
in reply to: my dosing style experiments #1176560Thanks Shirley! Yep the half-life is so important for methimazole it is 4-6 hours. For contrast PTU’s half-life is 75 minutes and PTU is definitely recommended to be taken split 3 ways. from Desk Reference of Clinical Pharmacology My first endo prescribed my PTU as dosing once a day – when I told her I wanted to divide it and do three times a day she wasn’t opposed but seemed to think it was pointless. It felt better to me though so I still found it worth it.
in reply to: Labs While On ATDs #1176544grrrrraves wrote:Thanks for the reply. I have tried asking various things but the endocrinologist pretty much refuses to engage in any conversation with me about anything.LOL, mine instead talks and talks at me but refuses to actually address anything I say!
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