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  • cathycnm
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    Post count: 284

    Ewmb- I am in-process with becoming a moderator – I seem to be the only one on the last couple of days. Let me see what I can find out for you. Cathy

    cathycnm
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    Post count: 284

    Hot and chill – You bring up an interesting point about how different physicians might manage us a little differently. There has been some research that says that TSH is a bone builder – but obviously, it still needs to be in normal limits (not hyper or hypo). There is other research that says keeping TSH on the lower side protects us from heart disease. As one with severe osteoporosis pre-Graves (though, with meds, I think it is improving) AND with high cholesterol and very, very early heart vessel changes (atherosclerosis) – I have read the research on both sides. Each practitioner develops their approach, for sure. Culture also impacts medical practice, as does school they attended and what journals they subscribe to. There are, however, clear treatment standards that make the approaches more alike than different.

    As far as being uninsured and unemployed – that is a tough barrier. I admire you for taking care of yourself despite all of that. I have walked that road – it is a medical adventure, for sure.

    cathycnm
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    Post count: 284

    Abigail – You bring up some great points on healing. Thyroid does impact our mood. It is so hard, even for the most optimistic people, to stay positive when our levels are topsie-turvey. I has switched to a new PCP within a few months before my first symptoms. And I started with me endo afterwords. This year, I could see both of them working to decide if I had "major depression" or if it was thyroid. I wondered if I had major depression a few times, too <img decoding=” title=”Wink” /> I remember this spring telling my endo that I thought my exercise level was in the top 10% for my age group nationally (we were talking about high cholesterol). I just remember his stopping in his tracks and looking at me and saying "top 10 percent – you see yourself in the top 10%?" I could see I had broken out of the "always depressed" mode in his mind. But before I stabilized, that is sure how I looked to folks!

    I am so glad you are doing better and have come to share your recovery. I think it is light at the end of the tunnel for many people. I think we can appreciate ourselves and our strengths more after all of this, for sure.

    cathycnm
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    Post count: 284
    in reply to: PTU? #1069808

    Sue – It sounds like you are making progress. Thyroid is an interesting hormone because it is very linked to mood and emotion. I honestly don’t think we know everything about the connections – but I am guessing we will find several of the neurotransmitters (brain chemical messengers) that are influenced by thyroid levels. Like you, I cry and get depressed when I am hyper – and when I am hypo.

    I wish you the best – let us know how you are doing and what you decide.

    cathycnm
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    Post count: 284

    Yea!!! I wish both of you the best on your journey with this. GI stuff is so disabling – I worked with a social worker who had Crohn’s and she really always had to have a back up in-case this reared up. She did great with it – and I think she also had incredible strength.

    cathycnm
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    Post count: 284

    Abigail – I was really impressed with your strength when I was reading this. It does not sound like you have "suffered" – it sounds like you are pretty resilient to me. Welcome to the board!!!

    I would like to know what strategies you used to stay positive through all of this. I can always use more info about that!

    Again, welcome!

    cathycnm
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    Post count: 284

    Good luck with your search. They are different. Crone disease can occure anyplace in the GI tract, UC occurs in the colon only. I wish your kin well on this journey!

    cathycnm
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    Post count: 284
    in reply to: PTU? #1069801

    Hopeful – Great answer, too. Since it takes PTU a few weeks to work, the beta blocker is used to reduce symptoms until the thyroid levels get stable.

    What a great group of empowered consumers this list is. Cheers!

    cathycnm
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    Post count: 284
    in reply to: PTU? #1069800

    Ely – you are on the right track – great answer.

    I may be able to add a little (thanks to my pharmacology book) – PTU stands for Propylthiouracil and it acts to keep the thyroid from producing thyroid hormone. It is a sister drug (same family) as Tapazole. One thing to be aware of is that it does not destroy exhisting thyroid hormone – it just stops new hormone from being created. For that reason – it can take 3-12 (or longer) weeks before the levels normalize.

    Yes, it must be taken several times a day because the body can process and eliminate it fairly quickly. While it does cross the placenta – it is safe during preganacy. PTU acts on both the thyroid (production) and in the outlying tissues (prevents conversion of T4 to T3), whereas Tapazole acts only on the thyroid. Tapazole can be taken once daily but, again, is not generally used during pregnancy.

    cathycnm
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    Post count: 284

    I will toast to that one, Hyperm. I am amazed at how little nurses and doctors know – let alone the general public. We, here, are the pioneers – the ones who are truely the change agents. I agree – it takes all of us!!!

    cathycnm
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    Post count: 284

    Hey MB – I might be able to help out. What sort of info are you looking for??? There is some info at the National Institute of Diabetes and Digestive and Kidney diseases – perhaps you could google them and see if that is helpful.

    I hope it is not you with that going on. <img decoding=:” title=”Question” />

    cathycnm
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    Post count: 284

    Kim – metabolisms do spead up for about an hour after a meal normally. You are very observant and correct about digestion causing some changes.

    I think letting your endo that it is getting up to 99 is a good idea – that may be a little faster than norm. Sounds like you are taking good care of yourself!!! <img decoding=” title=”Very Happy” />

    cathycnm
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    Post count: 284

    Reading through these posts reminded me of returning to school for my post-masters (online) last fall. I had RAI 1 week after classes started and was hypo by midterm. I had that surge of thyroid hormone right about the first and second exam. I teach, so I have counseled many of my own students on test anxiety. I could not believe it was happening to me. I would try to read the question – and the words seemed to just dance around the page. None of the answers made sense. I honestly thought I would have to drop out until I was regulated. But – after I started replacement hormone at midterms, my grades started to turn around. I emailed my instructor (a nurse practitioner) and told her my test scores and my TSH were definately related to one another!!! What a lesson in the joy of too much adrenaline!!!

    cathycnm
    Participant
    Post count: 284

    Thank you, thank you. My bone scan is next month (I had osteo before Graves – in fact we found the Graves when I failed on the top-of-the-line bone building med). So, I had one year on the bone med after RAI – which means I may have made some progress. I can only be on the med for 2 years due to FDA restrictions. If I have made progress, then I will believe I am on the upswing from all of this. As a women’s health practitioner, I never dreamed menopause would hold these health surprizes. When I look at it, all are things that were "silent" diseases – osteoporosis, Grave’s (I had some symptoms but you guys all know how non-specific they can be) and high cholesterol. I just want to put the word out that I might still be unaware of one or all of them if I was not getting regular health screenings. Imagine having severe osteoporosis – not knowing – then getting Grave’s (that can also thin bones). It is important to take care of ourselves, especially during transitions like menopause. Every one of my silent diseases can be related to (not necessarly directly caused by) menopause. So – I will keep you posted on my scan. If it is improved, we can do an internet toast or something. <img decoding=” title=”Very Happy” /> Seriously, I would probably sob with joy. What a journey these past 4 years!

    cathycnm
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    Post count: 284

    Rhonda – What an interesting experience. I sometimes think "only in the rural west" would things like this happen <img decoding=” title=”Very Happy” /> Casper is beautiful – I love the wide open spaces of Wyoming. Colorado is getting too popular for me somedays.

    I am not that familiar with rheumatologists managing Graves. I think it is certianly your right to ask the new physician how many cases of Graves they handle per year. There is some research that says when a medical provider does less than 50 of something a year, they don’t have as good of outcomes as those who do 50 or more. I can remember a time when, as a nurse practitioner in the rural west, the OB and I split up the IUD and norplants so we would have 50 or each per year. I did norplants for everyone in town – he did IUDs. It kept us both competent to split it like that.

    It certianly is true that once we are through RAI and on a pretty stable dose of replacement, it becomes easier for physicians to "manage" us. At one point, my endo talked about going to "problem visits only" with my PCP (an internist) doing primary management. But when my thyroid med needed some fine tuning – she was not sure what to do and sent me back to him. He fixed the problem and put me back on every 6 month visits with him. She is pretty new out of med school (3 years, I think) but I think a more seasoned internist may have known exactly what to do. So, I think a lot of it is the experience of the physician at managing Graves once we are stable. Let us know how it goes up there in windy Wyoming. My aunt use to write for a paper in Lander and I remember her quote about "Why does Wyoming want to be like the rest of the States when the rest of the States want to be like Wyoming." It is different up there!

Viewing 15 posts - 46 through 60 (of 267 total)