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Thanks everyone for your messages, there’s some great advice there. I really appreciate it.
Paleblue – I’m going to invest in a heart rate monitor, I hadn’t thought of that – thank you! So simple and can save my heart rate increasing any further due to the anxiety of worrying if my heart rate has increased! I also suffer from knee pain and have done for a couple of years now. It started after a minor go kart accident where I really bruised my knees and I thought all my pain was related to that, though x-rays and physio could find nothing wrong. I’m now wondering if the timing was perhaps a coincidence and some of the pain has in fact been thyroid related. I have some minor discomfort still which I’ve put down to the pains I’ve experienced from taking carbimazole. I’ll bear that in mind too for when I’m off the meds. I hope you get to come off your meds and it works for you this time. Please do let us know how you get on today with your doc.
Kimberley and James – thanks for the info about the TRab test. I don’t have another appt with my consultant till July, 5 weeks after I’m supposed to stop the meds (1st June). I’m trying to pluck up the courage while I’m writing this to contact her for her thoughts on it. I know that sounds pathetic but I feel reluctant to…though I know for my own peace of mind I should. My reluctance stems from thinking she already thinks I’m a hypochondriac and won’t take me seriously as I’ve contacted her a few times in between appts. Need to get that out of my head. At the end of the day it doesn’t really matter what she thinks of me! There…have given myself a talking to – I’ll email her.
It’s really encouraging to hear you’re in your 9th year of remission James – gives me hope. The stress thing has been on my mind. My boss is being really supportive and has told me to take whatever time I need and given me the ok to pay for whatever cover’s required. Hopefully a couple of weeks off the meds and I’ll feel more confident and able to handle things at work again. There’s just a lot of bad timing going on at the mo…my assistant left and I’ve been interviewing this week (more next week) with a view to training someone in the next few weeks. I also have an exam next Friday. It’s all temporary stress and could be much worse.
Thanks again everyone. Hope you’re all having a happy day
xxxThanks Kimberley and Barbsie. I have an appt with my endo next week so will check it out then.
That area of my throat is actually quite painful this afternoon and, I think, seems swollen…last time this happened my Husband said it looked fine to him though. Maybe it’s psychosomatic. I do doubt myself sometimes. I’ll ask his opinion again when I get home.
Hope you’re both well
.Hi Jane
Yup, like the others who have replied I’ve experienced it too…and still am. I’m currently on block and replace treatment. My hair loss was an original symptom which calmed down dramatically for a few weeks into treatment before returning to a lesser extent. As per Ski’s explanation mine now seems to fluctuate with changes of meds manly, though I can also experience what seem like unexplained sheddings!!
My hair is still very long but approaching almost half thickness I would say. I no longer have bald patches, only general thinning. Off for the chop very soon me thinks…only reason for not having done so already is my dislike of going to the hairdressers!
My endo’s not concerned by it either and told me it will continue to shed until most of the growth that occurred whilst thyrotoxic is gone. She said now that I’m euthyroid new growth will be good and it’ll thicken up gradually and new growth will be healthy again.
Tiz a bit freaky when washing I have to admit, ending up with handfuls of hair!!! Looks worse of course as it is so long.
Chin up, we become accustomed and it does get better.
xxHi Rebecca
Wow, just read one of your other posts about questions to ask your surgeon…sounds like you’re having an exceptionally hard time at the moment. Big hug to you, hope you get all you need from your appointment next week with the surgeon.
Thanks for your support, I really appreciate it. I find it comforting somehow knowing you’re relatively nearby…that there is someone in the UK going through similiar experiences. Having read other posts on the forum I can see how supportive everybody is of each other here, I’m so glad I found it. I can’t explain myself properly to my family and friends, or when I try to it sounds weak in comparison to how I actually feel, if that makes sense. Though they mean well, when someone comes back with "yes I feel that way sometimes too" I find myself getting really angry…no doubt angrier than I would if I felt well by all accounts; I’m pretty sure I’m a sufferer (as are those on the receiving end) of the Graves rage I’ve heard people here talk of.
My endo’s secretary contacted me yesterday, to confirm this evenings appointment, and arranged for me to pop along for blood tests last night…the results should be back in time for my appt today. I took more notice this time, they are checking my TSH, T3 and T4 levels and have been doing so since my first blood test. I’m going to ask for a copy of all my results to date so I can gain a better understanding of what it all means and exactly where I’m at.
I’ve written a list of everything I’ve been experiencing as I know I’ll forget otherwise…or do my usual playing it down, don’t know why I do that! I’m also going to ask to be monitored more regularly and see what response I get. I have other questions for my endo, including how many patients with Graves she has had…still going to ask for a second opinion though, just need to find some courage to do that. Sounds silly I know, my confidence is pretty low at the moment, it fluctuates hugely like most my emotions and feelings recently. Hehe…would prob be a good thing if the Graves rage hit me while I was in there…I wouldn’t care what anyone thought then
!!!Hope you and everyone else are having a good, or at least better, day today.
Catherine
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