[carrdon]

in reply to: feeling miserable–hypo after RAI #1183368

Sorry, haven’t logged on in a few years. Just in case this may help someone in the tough decisions associated with Graves…

My wife had RAI in 2008. After a few years, she developed GO (Graves’ Ophthalmopathy). After several years of dealing with GO symptoms, she elected to go through with OD (Orbital Decompression). Not fun, but in the end, she was glad she had the OD, primarily because it relieved the constant pain.

In hindsight (always 20/10), we sorta wished the Dr. would have had us consider a thyroidectomy instead of RAI. I believe there is data now showing a higher occurrence rate of GO for RAI. Not sure if they had that data back in 2008, but sure wished we’d known then.

[carrdon]

in reply to: feeling miserable–hypo after RAI #1183359

My wife had RAI treatment in 2008 for Graves. After her numbers had shown “in the normal range” for about a year while taking only Synthroid, she was still complaining that she just didn’t feel like she did before – mostly a lack of energy. Her doc added a very small dosage of Cytomel (I think like 5 micro grams). After a few weeks she said she had a noticeable improvement and has been taking both now for about 5 years. Her take on the combo is that while it did not make her feel as good as she did before Graves, it was a definite improvement. The generic of Cytomel is Liothronine. You might research and ask your doctor about it.

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