[carolinew]

in reply to: Graves Disease – Synthroid Dosage – Alternative Day Amounts #1169620

Bobbi: that’s what I thought, in my case, that the gland is so damaged from my immune system that it is slowly dying. The first Endo I saw also had this opinion, that it was going to die eventually.

Can anyone tell me what percentage of Grave’s patients develop thyroid cancer?

[carolinew]

in reply to: Graves Disease – Synthroid Dosage – Alternative Day Amounts #1169617

Thanks for the reply Kimberly. And for the tip about "Runlacie", I will definitely check that out.

Interesting theory. So much is unknown about this disease, it’s very frustrating not knowing what’s going on with my body from one day to the next, and the doctor’s can’t offer much help in terms of explaining things, and they don’t really understand how you’re feeling physically and emotionally through all of this.

Caroline

[carolinew]

in reply to: Graves Disease – Synthroid Dosage – Alternative Day Amounts #1169615

Hi Cindy,

Great question as I am just now facing the same dilemma. I was diagnosed with Grave’s in 2006, went on PTU, stopped taking PTU, was stable for a while, then my levels started to slowly drop over time and I am now on Synthroid. 0.137 mg made me hyper so I switched to 0.125 mg and I am now having hypo symptoms (taking 15 mcg Cytomel twice a day right now to get me through my days until my levels come back up). (this disease is such a pain in the butt)

Does anybody else have the same experience with their thyroid levels dropping over time? Does it mean that my thyroid gland is dying?

Also, if there are any other runners on this forum, can you tell me if you are having trouble adjusting your levels while you are training? It seems every time I try to start running consistently I end up hypo again.

Thank you.

Caroline

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