Forum Replies Created
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Hello vanillasky.
I too have suffered from heat intolerance and from hot flashes. My problem started a few months after fertility treatment. Hormonal changes sure make things worst. I do feel cold now more often but I still get hot at times. My TSH is a little bit low but my fT4 is normal. I mentioned my heat intolerance to my Endo last time I saw him and he told me that a lot of people just feel hot a lot 😮 Not much of an answer.
Also, regarding this:
vanillasky wrote:For years, local endo said I had Hashimotos but I was hyper a lot and it would then dump hormone and turn into hyp0 and then put on Synthroid. My thyroid would be working again and fighting to regain what it had lost so thus, reaction to Synthroid and hyper again!!!!!!!!!My Endo told me that Hashimotos and Graves is all one disease and that they are the two ends of the spectrum. He is the first one I hear say this by the way.
Caro
Hello Kimberly. Thank you for your response.
Can I ask you a question. Has your TSI gotten lower? I know you said it has been elevated but has it decreased, increased, or stayed the same? I really would like to know what causes the TSI changes.
My labs have a column that is titled “Abnormal” and it is populated with either “FALSE” or “TRUE”. All of my labs that have a result within the normal range say “FALSE”. Anything outside the normal range says “TRUE”. I’m thinking that therefore, the TSI might be <139% but I wasn't given a # for it. I'm seeing my Dr soon and I will ask him about the #. Hopefully he has more information. He might have the same thing as me. I might have to go straight to the lab where I had it done. I would like to have the # to compare things. The bad thing is that I have only had it done 3 times. Twice when I first got sick and each time at different labs so the ranges don't match at all. And the 3rd time was done at the same place as the first one but instead of getting a # like I did with the 1st lab, they gave me a "FALSE"
So, I can’t really compare the results.I hope that the TSI has gone down. From what I have read though, it is hard to make it go down so I’m thinking that maybe the TSI result might be an error. You have been here for a while and might have read similar cases. Is it possible for the TSI to go down after 5 months? I was under the impression that it would stay up for years. Do you know if once it is down, can it go back up?
The TSI is such an interesting thing. What makes it go away anyway? That is the million dollar question, right? I haven’t been euthyroid so maybe not that. On the contrary, I was hypo for a while b/c I was put on a high dose of Methimazole. Maybe the Methimazole?
Anaway … thank you for reading me and for your help.
Be well,
Carojstephens wrote:i’m with Carito71, I had the surgery about 8 months ago and life is pretty good. takes a bit to get used to taking a pill every morning. the recovery was easy, never needed more than Tylenol. you are on light duty
or 2 weeks so living alone may be a struggle.Hello and thank you for sharing. This gives hope to many, including me. I’m so glad you are doing well. I’ll take a pill a day if it means that I’ll feel healthy
Thank you again …
CaroKimberly, thank you for replying. I’m nervous about the whole thing. I’ve been getting headaches but they seem to be related to my allergies and the change of weather. I feel hot at times so I get worried that I can’t even tell what symptoms to look for. If I’m hypO I should be cold but I’m hot
My heart is fine but my BP gets low with the Metoprolol. Even more confusing is that my general Dr. thought that my Endo should have not lowered my Methimazole so much last time (From 30mg/day to 10mg/day). She thought that at the dose he put me on that I would go hypER again. I guess the Endo has more experience on the whole thing. I sure hope so Thank you for the quick response. Im really hoping and praying that the next 5 days go smoothly. There is nothing better than being healthy.
Caro
Hello.
You have gone through a lot and it seems that you are ready to move on to RAI.
I personally like the surgical option better. I’m afraid of the radiation. Also, I have read that the pill (RAI) can increase eye problems. I have had very itchy eyes in the past and I feel like they get puffy at times so therefore another reason why I prefer the surgical option. There are pros and cons with all 3 options (Rx, RAI, surgery) so informing ourselves on all three is a plus. At the end it is you and your Dr. together who will need to make the decision.
I’m on Methimazole at the moment in hopes that I can achieve remission at some point in the future. So far Methimazole seems to be working. If Methimazole doesn’t work for some reason as we move forward, I would like to go with surgery.
I think that no matter what option you choose, that it is very important that you feel comfortable and happy with your decision. We can’t fully embrace a path if we are not happy and comfortable with our decision. Once you have examined your options, made a list of pros and cons, decided what you can and can’t live with, and have made a decision, stick with it and have faith that it will work for you.
Wish you the best with your decision and treatment. Please keep us posted.
Caro
Hello.
I personally like the surgical option better. I’m afraid of the radiation. Also, I have read that the pill (RAI) can increase eye problems. I have had very itchy eyes in the past and I feel like they get puffy at times so therefore another reason why I prefer the surgical option. There are pros and cons with all 3 options (Rx, RAI, surgery) so informing ourselves on all three is a plus. Our Drs. have their reasons as to why they prefer one option over the other so ask your Dr. why he/she prefers surgery over RAI and medication (methimazole, tapazole, etc). My Dr. seems to like RAI because, as you stated, it is easier in some regards. At the end it is you and your Dr. together who will need to make the decision.
I’m still learning so I’m hoping that someone more knowledgeable than me will come in soon and give you more input.
I’m on Methimazole at the moment in hopes that I can achieve remission at some point in the future. So far Methimazole seems to be working. If Methimazole doesn’t work for some reason as we move forward, I would like to go with surgery.
Wish you the best with your decision and treatment.
CaroHello Claire,
I’m sorry to hear that you are having some hair loss. It is an emotional thing to have to go through. I’ve been there in the past. I was told that I have alopecia areata (an autoimmune problem). That is when you loose hair in patches. Fortunately, my hair has come back every time. Now with the thyroid problems, I haven’t really experienced any hair loss yet. My Endo told me that the hair comes back also and to be prepared (this made me sad … to think that I have to face this with thyroid issues as well). He said that b/c it falls prematurely that it comes back slowly. I found that massaging the head has helped in the past … blood flow helps.
Has your Dr said whether the hair loss you are experiencing is due to your thyroid? You mentioned that you are euthyroid so I was wondering if the hair loss was due to something else. Low on vitamins, stress, autoimmune condition (such as alopecia areata). It might be worth checking it out b/c for alopecia areata they can give you steroid injections on the scalp to help the hair grow faster. In the past a dermatologist has helped me with the alopecia areata and I have tried the injections. There is also cream treatments prescribed by the dermatologist for small areas. And this might sound crazy but I read that onion helps with alopecia areata so the last time I had an episode all I tried was rubbing on onion. It worked for me. I know … crazy right? but it worked for me and I didn’t have to go through the injections (they are painful because the scalp is very sensitive, plus it itches a lot after the injections).
Wish you the best with getting your hair back. Hang in there and please keep us posted.
Caro
Hello WWI2,
I’m so glad to hear that you are feeling better. It took me about 3 wks to feel any positive changes. I think I read at another post that you suffer from Celiac? Or Am I confusing you with someone else? Anyway, I too have Celiac so if you do too, I just wanted to let you know that you are not alone and to hang in there. From I have read, Celiac and GD can happen together. I know it can be hard getting one thing under control and well having to deal with multiple autoimmune problems makes it very hard but you are not alone.
All 3 treatment options scare me a lot so completely understand how you are feeling about having to decide …. All 3 have their pros and cons so educating ourselves on all three is a most in order to make the best decision as individuals since not all decisions are good for everyone. I think that being mentally happy with the decision we make helps a lot.
Wish you the best with your labs and with making a decision.
Caro
shakira7 wrote:Thank you, Carito71. These are great information.
I am in the process of giving away anything that has gluten; pasta, flour, oats…etc…to my friends.
I live in a big city, so I’m sure I’ll be able to find gluten-free food.Take care,
Shakira 7
P.S. – This time, I’ll just press the Submit button, only once.
You are welcome.
The key is to eat healthy and intake the necessary nutrients. You will find that since you can almost eat anything with a GF diet, because there is a lot of GF food out there, that you will have to pick the healthy choices just like with anything else.By the way, if you enjoy oats (healthy for cholesterol), Bob’s Red Mill has it GF and is RS ELISA certified.
Wish you the best trying it out. I know it is hard to get started but as I mentioned above, there are all kinds of GF foods now a days that you can about eat anything you like. When I started there were very few options and it was very hard for me but now I’m so amazed at the options out there. It is a little bit more expensive though, so in that regard, if you don’t need to follow a GF diet for health reasons you might be better off eating gluten foods. It might not be a good way to loose weight b/c of all the options out there (I think I read that you eat pretty healthy now so you will probably eat pretty healthy with or without GF) but it might be worth trying it to see if you feel better.
Lots of health to you.
Caro shakira7 wrote:Hello Carito71,Nice to virtually meet you.
Nice to virtually meet you too
Hello Darcy. Thank you!!! I can’t believe its been 3 months (almost 4) since all this started. Well, I was having a little bit of ear problems but I’m better now. I did some gargles with warm water and salt and it seems to have helped. I know my allergies are bothering me for sure. Thank you so much for the + vibes. I see my Endo in a couple of weeks. It seems that I’ll be struggling to find my sweet spot too. I got new instructions and I’m supposed to lower the Methimazole now to 5mg/day. I really do hope you find your sweet spot soon. The very best with your labs. Please keep us posted.
Smiles,
CaroHello Shakira7,
No problem
Hope your meeting with your Endo was a success. I’m sorry to hear that your scan definitely shows GD. I felt very sad myself when I was told I had hyperthyroidism but I felt so sick at the time that I was also happy that there was a reason for my symptoms. And … most importantly, that there were treatments for it … not just one but 3 different options.
Wish you the best with the treatment you and your Dr. decide upon. Keep us posted.
Caro
