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Hello. I’m still learning all about GD but I have read that smoking can increase TED symptoms.
Hope you feel better soon.
Hello Bri.
Thank you for your message. It really does help to read positive messages. My primary Dr is helping me with the tachycardia. I went to see her on Mond and she prescribed Metoprolol. I like it better than the Propranolol because I only take it once a day and my heartbeat has been constant since then. I’m also not over 102bpm now. I hope it continues to stay that way if not better b/c the tachycardia was one of the things that really bothered me.
I’m seeing new Endo next week and I’m hopeful I will get better treatment.
In April I was already feeling tired but did not know it was thyroid related.
I hope you feel better soon too.
I really liked your signature.
Caro
Hello Carolyn,
Welcome to the forum. I’m new here too. You can call me Caro.
When is your appt? I know how this disease can be so devastating. I’ve been feeling very sick for over a month. I was diagnosed on June 8 with hyperthyroidism and last Mond my primary Dr. told me it is Graves. I started seeing an Endo over 2 weeks ago but things are not going well so I’ll be seeing a new Endo next week.
I have tachycardia so I have to take a Beta blocker. Is your heart okay? If you haven’t had your appt yet and your heart is going fast I recommend talking with your primary Dr. to see if he/she can give you something for it. Tachycardia is one of the very dangerous things we experience with this disease.
I hope you are feeling better soon. Keep us posted.
Caro
This disease is terrible. It gets us by the head and slaps us around.
I hope what you are experiencing elizross is just from feeling tired. I can see how being tired can make one forget a thing or two. When I was very sick the first week I had to triple check my check book to make sure I wasn’t missing anything when paying my bills. I was super super tired and I knew I was bound to make a mistake.
Caro
Hello Susan,
Welcome to the forum. I’m new here too and still learning a lot about Graves. You can call me Caro.
I was diagnosed with hyperthyroidism on June 8. Last Mond my primary Dr. told me I have Graves. I haven’t had a scan yet but my TSI is 237 and my TPOab is +. I think that is why she said it is Graves.
I had to go the ER on June 8 b/c of tachycardia. At the ER I was told I had hyperthyroidism. A week later a had an appt with an Endo. He wanted to lower my thyroid before doing a scan b/c he said that he was afraid that I would get a thyroid storm from the iodine. He said my BP was low (normal range though) and my heart rate too high (average 96). I trusted him and started the Rx Methimazole. I have been on it for 2 wks and 2 days. My lab #s are still the same and my FT4 is even a little bit higher
. I will be seeing a new Endo next week. Along with Methimazole, I’m also taking Metoprolol. My HR stays in the 80s-90s since I’ve started taking the Metoprolol 2 days ago. I was taking Propranolol per the Endo but that would keep me up in the 100s b/c he did not want to increase my dose. I’m also able to sleep better and I’m not hot all of the time. I do feel fatigued all of the time and dizzy though. My primary Dr. has helped me with the tachycardia and she prescribed the Metoprolol.We’ll see what the new Endo says next week. I would like a scan to see if my thyroid is acting like Graves. It is interesting how yours is acting normal but you have been diagnosed with Graves. I read before that the TPOab can be + with other autoimmune diseases …. like Celiac for example. The way the Endo explained it to me, for Graves, the thyroid would be over active all the way (you would see dots close together all over the thyroid when doing an iodine scan). I don’t know anything about the %s and what they mean though.
As for removal of my thyroid function, if my thyroid has to go, I’ll choose surgery. I, personally, Am afraid of the radiation.
I wish you the very best with the RAI. Please keep us posted.
Happy 4th,
CaroHello Debbie,
Thank you!!!! Your post made me cry and I thank you for your response. You are so right, we are all different. I’m so glad this forum exists. I hope you are soon feeling well all of the time. 10 months seems like a long time. I have gone through 1 so far … well it will be one on the 8th since diagnosis. I don’t know what has been going on but I feel like I haven’t really gotten better but there are 2 things that have changed. I can sleep now and I’m not hot all of the time. Having said that, I feel more tired now. My #s are still the same since I started the Rx so I think it will take some time.
I will look for your posts and learn more about your journey.
Thank you again.
CaroThank you Kimberly. It is definitely an area that should be researched
We’ll see what my Dr. says on Mond. I was thinking last night that there wouldn’t it be nice if there was a Rx that could block the TSI. Maybe one day in the future Caro
Alexis,
I feel so discouraged at times
I’m looking forward to my appt on Mond with the new Endo though
I’m hoping he can help me feel better.You are right. Sleeping is a blessing. I didn’t sleep for a while and I don’t want to experience that again.
I was diagnosed with hyperthyroidism almost a month ago (June
. I think you had your surgery the same I had my 1st ultrasound.I hope you start feeling better and that the Synthroid gets to the levels you need. Are you symptoms like hyper symptoms?
My Dr. did not do anything about the new labs. He is the old Endo that thinks I should be as good as new after 2 wks of Methimazole. But that is okay, we’ll see what the new Endo says on Mond. I’m on a high dose so if they increase it, it will have to go up to 40mg if not 60 all the way. I don’t want to take too much and get sicker. I read that 40 and above has a greater chance of causing granulocytosis.
You are right. I probably have a lot of stored hormones. I had been sick before but it had never been diagnosed as a thyroid problem b/c my TSH was in the normal range but I suspect it was thyroid problems all along so maybe it will take longer
Stay positive. I hope you start to feel better soon. Thank you for the encouragement. Happy 4th!
CaroKimberly, I think you are probably right. I don’t have a fever thank God. I do sweat at times and have tachycardia but my mind is still all there
Thank you for the link and the PM information.
Caro
Hello Alexis,
Thank you for your concern. You are right, >= 120 heart rate can convert to something like Atrial Fibrillation. I’ve been watching it and thank God it has only gotten up to 114. When I was at the ER it did go to 125. Mine goes up and down and so my regular Dr., who I saw today, changed the Rx to another Beta Blocker but I will only need to take it once a day and she said that it would keep it more constant.
She used the word “thyroid storm” but I don’t think she meant I was having it. I read that you have to have fever and I don’t have it. I do have elevated liver enzymes, elevated cholesterol, skin rash on elbow, tachycardia, nervousness, fatigue. She said is all caused by the thyroid problem. I think if I had a fever and my heart was more elevated then I would be having a thyroid storm. I thought she said “with your thyroid storm” though. Maybe she thought I had a thyroid storm at the ER. I’ll have to ask her.
Right now I have my regular Dr. helping me. She did tell me “you have Graves”. It hurt when she said it but I kind of already knew it. I just needed to hear it from my Dr. The ER Dr. nor the Endo I was seeing had said that to me. My reg Dr. came to this conclusion b/c my TSI is up I think (I haven’t had a scan yet). A new Endo will see me next Monday and I don’t think I’m going back to the Endo I’ve been seeing.
Thank you for your advice. Hope you are better soon too.
Caro
