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in reply to: So what was your Graves story…. #1179278
It is interesting to read your experiences.
Mine is one that has finally ended. My wife asked me to ghost
write this for her since she passed 3/18/12.
Twenty four years ago when she was pregnant she had Graves Disease.
During the pregnancy she was thought to have gestational diabetes
Her obstatrician who was also her GYN found it to be Graves disease
shortly after the birth of our daughter.
We were referred to an endocrinologist who said she needed RAI coupled
with synthroid.
Both of her parents had thyroid disease and her Mother had a TT during her second pregnancy.
None of us knew the import or were given any explanation of what an autoimmune disease entailed.
Over the 23 years of treatment her thyroid grew,her goiter grew ,she had nodules ,her bones ached but her TSH was just fine
Her parathyroids were never checked, she never had a CAT scan or blood tests for calcitonin or Xrays. NO SHE WAS FINE.
That is until she had stomach pain and we went to the ER and she had a CAT scan which showed thyroid cancer in her brain,bones, all organs but her TSH was fine. STAGE 4 C medullary thyroid cancer.
Let me ask,if you have an autoimmune disease like Graves and your immune system is constantly being compromised and cancer is an opportunistic disease
why isn’t Graves Disease or Hashimotos taken seriously in the last 100 years.
How can you be fine when your own immune system is at war with itself.?
Now my young cousin and my daughter have been diagnosed with Hashimotos and IT IS NOT FINe!!!
How much longer can we have little to no progress with finding a way to conquer this killer ?
My BEAUTIFUL WIFE IS DEAD AND MAY HER DEATH NOT BE IN VAIN!
HELP!!!! An AUTOIMMUNE DISEASE IS NOT FINE/ -
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