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Viewing 8 posts - 1 through 8 (of 8 total)
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  • buriedsunshine
    Participant
    July 17, 2014 at 12:14 am
    Post count: 10
    in reply to: What symptoms and indicators do you track at home #1182816

    I wish I kept track but I downloaded the Cardiio app for the iPhone and take my heart rate all the time throughout the day. When I first started on my replacement hormones I kept track of everything I was feeling but as soon as I started feeling close to normal I abandoned it. Looking back on it, I feel kind of sorry for myself but it’s nice to know I’ve come so far. We’ve all come so far, I think. Graves’ can take a really hard toll on a person but we’re all still here!

    buriedsunshine
    Participant
    April 30, 2014 at 3:50 am
    Post count: 10
    in reply to: Normal, finally! #1182450

    Yay! Glad you’re feeling better. What’s the difference between Synthroid and Levo? Why is it that you don’t feel as good on Levo?

    I ask because I’m on Levo and this is the second time we’ve adjusted my dosage and I don’t feel quite right with this dose. I’m hoping to feel as normal as you, too!

    buriedsunshine
    Participant
    April 14, 2014 at 12:37 am
    Post count: 10
    in reply to: What is your life like after RAI ? #1182377

    Hi Lilly! I had RAI in December of 2013. January and February 2014 I felt pretty awful; I’m pretty sure I was hypo because I was cold, mildly depressed, etc. etc. But I started my replacement hormones in March 2014 and I feel amazing! We had to tweak my dosage but I do feel like I have my life back, however cliche that may sound!

    buriedsunshine
    Participant
    February 17, 2014 at 11:33 am
    Post count: 10
    in reply to: Today is the day #1182086

    Hi SunshineH20, I’m not GravesRookie but I was recently diagnosed in August. I can only speak about my personal experience but here it is:

    Diagnosed August. Took anti-thyroid (methimazole) in September. I was allergic so I started taking PTU. I felt so crummy all the time so from October-December I gained 15 pounds (I’m pretty short so the weight was noticeable). I had mild depression. I slept constantly. I lost all of my muscle and was pretty weak. I missed running and exercising. By mid-December (four months after my diagnosis) I decided on RAI. It’s only been about two months since RAI but I can say I’m really glad I chose RAI. Thinking back on it, September-December was really foggy for me. I actually don’t remember that much from it because every day bled into the other. I feel much better now — like I am less of a zombie. I started on my replacement hormones a few days ago and I am slowly starting to feel almost normal. It’s only been a few days, but I can honestly say I feel better. I kept a diary to track my thoughts and the last few weeks have been pretty positive.

    Hope this helped.

    buriedsunshine
    Participant
    February 5, 2014 at 2:07 am
    Post count: 10
    in reply to: Today is the day #1182079

    I was told to eat lemon candy too! For the nausea I did have some ginger candies I bought at an Asian supermarket.

    My uptake was 70% and my dose was 13mci. A little bit higher. :)

    Keep us updated!

    buriedsunshine
    Participant
    February 3, 2014 at 4:06 pm
    Post count: 10
    in reply to: Today is the day #1182075

    Hi GravesRookie,

    Looking forward to reading about your journey.

    I had RAI done on December 12th. It’s been a bit hectic: some days I felt great while other days I needed to stay in bed. I’m still not on replacement hormones, but my heart rate is slowly decreasing which is something to watch out for if you’re on atenolol or any beta blocker.

    Hopefully you can go back to eating salt, eggs, dairy, etc. soon! Best of luck to you!

    buriedsunshine
    Participant
    January 25, 2014 at 12:33 am
    Post count: 10
    in reply to: Felling ill after I 131 treatment needing advice #1181997

    Hi Lori, I had RAI done about six weeks ago. I felt pretty awful for the first two weeks with the same symptoms you are feeling now: nausea, tiredness, and generally feeling bad. For nausea I ate some ginger candies which helped me a lot. I was also told to drink tons of water and suck on lemon candies.

    I don’t know about WBC being high as I did not get that checked. The past six weeks have been up and down for me. Some days I have a lot of energy whereas other days you can find me in bed for hours on end. Graves is a long process and I’m just now beginning it. I am in constant contact with my endo so it helps to have a good relationship with yours. Hopefully more people will come in here and give their advice. :)

    I hope you feel better!

    buriedsunshine
    Participant
    January 12, 2014 at 8:56 pm
    Post count: 10
    in reply to: My journey and a question #1181901

    Ski,

    Thank you for taking the time to reply. I read it twice because it really made me feel better. :) I especially liked the emphasis on me and how I feel. It’s difficult to explain to family members what I’m feeling because to them, I look totally fine and not at all “sickly” except for the thin hair, of course!

    All in all, I’m trying to stay positive — it could always be worse and I’m glad I’m getting treatment!

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