[Brucelee42]

in reply to: RAI Fears – need some possitive feedback! #1062344

Thanks all, your feedback is helping. My wife is feeling a little bit better but she keeps finding the horror stories and starts freaking out again. Her concern now is the eye issues. She has some of the eye symptoms now, no bulging, but deffinately dry and red. Her dose on tuesday will be 18 mci.

Just some history. Her last labs were ultrasensitive TSH .094, Free T3 3.8, and Free T4 1.29 (taken 3/24) On 3/10 her levels were ultrasensitive TSH .323, Free T3 3.4, and Free T4 of 1.33. Some of the older numbers – After taking PTU for about a month, on 1/21 her TSH was 1.91, T3 was 106, and Free T4 was .82. On 1/28 TSH was .6 and T3 was 119, and Free T4 was .92. When they first found out about it they said her TSH was 0. It was shortly after that that she had her incident in the ER which was when she was put on the PTU. While she responded well to the PTU, she went hypo for a while, which is why they stopped it, it made her feel terrible.

She was scheduled to have the RAI back at the end of february, and a few days before the proceedure we were visiting with the Endo and she said that Kimberley deffinately had to have it done. That her thyroid was "trying to kill her" she had us do one final set of labs. I don’t remember what the numbers were, but the Endo called and said she cancelled the proceedure. She said the numbers were fine and she couldn’t do the RAI if her thyroid was acting ok. Thats when we decided to get a second opinion.

Kimberley hasn’t been on any thyroid meds since january, only digoxin(spelling?) for heart rate if it gets above 90bpm. Since then, her hairloss is comming back, anxiety is through the roof, and you feel her body heat (even though there is no temp)

When she first came to America almost four years ago, she did go through a period where she gained quite a bit (don’t know if it was the proportion sizes here) and couldn’t loose it. Then in december of last year when all of this started, she dropped the weight without even trying. She is curious if she has the thing were you go back and forth between hypo and hyper as your thyroid starts to fail. She does have the antibodies that point to graves. I think in her mind she feels that there is so much uncertainty, and thats why she feels like she does about the RAI.

She did day say yesterday that she knows she cant continue like she is, but worried about getting worse before getting better, because she is at the edge now.

Anyway, thanks again for your support and insight. Hopefully she will be feeling better soon!

[Brucelee42]

in reply to: RAI Fears – need some possitive feedback! #1062342

Thanks. We are all too familiar with the storm. I don’t know if she had a "complete" storm, but she did have her heart rate shoot over 200 beats a minute on a chance visit to the ER. We were lucky we were there I guess. I hope to have her check out the site tommorrow, she hasn’t been ready to check it out yet.

As of now, the plan is still going forward for tuesday. She is just wrestling with the feeling that she shouldn’t do it. She knows that she needs to, but its that inner voice that bugs her. Hopefully she will have some insite when she looks at the messges here from folks like yourself.

Thanks again!

[Brucelee42]

in reply to: RAI Fears – need some possitive feedback! #1062340

Thanks! I will do that. She is still concerned and thinking about trying to treat it naturally. (while being on the MMI perhaps) Don’t know. Her biggest fear is she does this and it turns out not to be what is making her feel bad.

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