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Aw shucks ya’ll are gona have me blushing with all this friendliness
While indeed the last year or two has been challenging this diagnosis really put things into perspective for me. It seperated the important from the unimportant and taught me (REALLY fast!) that it’s okay for me to slow down, let a few stressors go, and to really take good care of myself. If I can’t find positives in this mess my head will explode ya know?
As of yesterday my MMI dose was halved so I’m hoping that the BMs slow down to some extent. It is such a powerful drug and my dose was/is high and it seems the many BMs correspond with my starting on it. Prior to going to the ER (who were indeed amazing- diagnosed in one hour- they were all kind of amazed that I presented at the ER for Grave’s but I felt so bad where else would I go?) I was having 2-3 solid BMs a day. By the second day on MMI it started in earnest so I attribute it to the med or combination of meds. In any case it’s a small price to pay. I’m planning on asking my Endo about it (and about Imodium aka Loperimide) at my next visit.
You guys have been great! As soon as I read that 7 women to 1 man get Grave’s I knew I had the right dsease for me
. I mean I AM single now right? “The couple that sweats together” and all that, huh?… Nah I’m just teasing – I’m here for serious biz but dammit if I can’t laugh I’d have to cry and you can trust me when I tell you that you DON’T want that from me!Yep it’s 3:42am and here I am wide awake and hungry (gee – imagine that huh?) so I’m going to make something to eat and try to catch a little nap before sunrise. I never was much of a sleeper so this isn’t so bad.
It isn’t so good either but it really could be a LOT worse.
Love to all,
Boomer
Wow! Fast and great replies- thanks so much!
I will certainly bring this up with my Endo at my next appointment and I’ll start keeping a meal journal to look for patterns.
I’ve done my research and feel that I’ve made an educated decision regarding my treatment as this two week period is more of a “holding pattern” than anything else. My case was deeemed “severe” so I’m going to take the RAI and leave the surgery as a last resort. Although radiation is intense I feel it is less intrusive and therefore less shocking to my already-upset body.
I hear people badmouth the phama biz all the time but let me tell you: The Beta Blocker is a godsend! No more racing heart, no more tremors, no more feeling shaky in my core. Sure I’m weak as all get-out but I can do strength training later to (hopefully) get back to my old ornery self
Having trouble sleeping but that is going to take some time. I can go a month without good sleep before I start seeing pink elephants and whatnot so bring it on! In spite of feeling SO weak (lost so much muscle mass from an already lean frame) I’m feeling strong and hopeful. I’m just happy to be alive and I feel like I have a second chance at life.
Babble babble ramble ramble I’m sure my day(s) of whining will be upon me soon enough but for right now I am SO grateful to at least understand what the heck was happening to my body (the body I’m quite disappointed in right now I might add) that it’s a relief just knowing what’s wrong.
Thanks for your thoughts and for replying so quickly- it means the world to me.
Thanks, too, for allowing me to prattle on and think out loud here.Peace to all,
Boomer
P.S. Oh yeah speaking of muscles (or was it brains?) – if anyone sees my butt I want it back- that thing’s been gone for months now and, well, I miss it even though it’s got a crack in it…
