I just want to thank you all for your responses. It helps just to know there are others out there. Even when people try to be sympathetic, it’s hard because I know they really don’t understand.
I do have one question for you Bobbi. Back in the states, my civilian endocrinologist who diagnosed me was the one who originally told me that the "old" way of doing things was basing dosage changes off TSH, but that FT3 and FT4 levels were better indicators, and my research since then has always led me to believe that, which led me to part of my frustration on the doctor here. But if yours bases off of TSH and you’re doing ok, who am I to argue that point. My problem with it in my case is that the FT4 WAS run, and it decreased along with my TSH. So while my FT4 dropped to borderline a borderline low level, instead of more TSH being produced, my TSH also dropped. So it seems my seesaw is broken, LOL. That’s why I’m so confused. I can’t find anything that says what it means when TSH and FT4 BOTH drop, and drop into the low range. I know my doctor doesn’t know, no slam intended on him in this case, he’s not a specialist, he’s just trying to do the best he can with really not a lot of knowledge to go off of.
It’s things like this that make me re-consider just having the surgery and quit fighting, I feel like I’m fighting a losing battle anyway. If the ENT here did more of these surgeries, I probably already would have done it. It’s my mistrust of the surgeons skill in performing this specific surgery that keeps holding me back.
