[bluesky]

in reply to: Your opinion please…3 out of 6 Family members have Grave’s #1067419

Grave’s is not a rare disease.

I read that the prevalence rate in the US is about 1 in 89 people. That’s something like 3.5 million people.

There is a genetic component, but unrelated people who know each other or live together can both have it just because a lot of people have it, regardless of any common factors in their environment.

[bluesky]

in reply to: Answers, anyone? #1067340

elf wrote:Hi bluesky,

When you say, "In retrospect, I did have symptoms (eye pain, tachycardia, heat intolerance), but didn’t connect them to a specific disorder." – the thinness should be added there, too.

Thinness was not one of my symptoms. My weight was steady. In fact I gained weight all the way through from being diagnosed with GD to RAI and now through the first two weeks of treatment with Levoxyl. Total weight gain is about 15 lbs over six months.

[bluesky]

in reply to: Answers, anyone? #1067338

…In theory, our metabolism "should" return to normal once our levels are stabilized,…of course, we need to eat prudently.

…Because we lose muscle, sometimes even while hyperthyroid, we are taking in more calories than our bodies are using…

Hi folks — I know I’m new here and probably don’t have a right to demand things like this. And, don’t get me wrong, I absolutely appreciate the effort to share information and help each other.

HOWEVER, it’s rather off-putting when people post using the plural pronouns "we" and "our" when they really mean "my" and "your." All any of us can do here is talk about our own experience and often suggestions to each other. To generalize about the the entire population of people with Graves disease is inaccurate at best and patronizing and insulting at worst.

I’ll get off my soapbox now. Or should I say, I’ll get off our soapbox. ” title=”Wink” />

[bluesky]

in reply to: First set of results since RAI- Confused!! #1067306

Based solely on my experience and the information I received from my endocrinologist, four weeks is too soon to have adequate results on the effectiveness of RAI. My doc doesn’t even do the first post-RAI testing until six weeks out.

I don’t want to generalize about everyone. You can see from my other posts here, that I despise when people post using "we" and "us" when they mean "I" and "me," so this is just my experience. I hope sharing it is helpful.

[bluesky]

in reply to: Answers, anyone? #1067335

Thanks for the thoughtful answer, Bobbi.

Can I assume that when you say "our" and "we" you mean "most people with Graves disease?" Or are you just taking about your personal experience? I’m just wondering.

[Author]

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