[Blessed]

in reply to: So confused #1071381

Thank you mamabear and all others who have helped me with this decision. I’ve decided to go with the Tapazole for awhile. Been only 3 days, but i’ll keep you all updated. thanks again.

[Blessed]

in reply to: And so it begins… #1071556

ski,
Thank you! You really are very knowledgable about all this and thanks to you and many others I will be too very soon it seems. Each day I learn something new. Yes, it was very helpful, now I just need to find out my levels so I can see what it all entails for ME and MY thyroid. I’ve started back on the tapapzole and still feeling ok, although my life is full of stress lately and my parents are concerned for my health b/c of that. I know GD can be a stress related thing but while I’m on medication can stress disrupt things? Also, is it true that the tapazole needs to be taken at the same time everday and if so when I miss it at that time can i take it later or will that screw it up? Thanks again!
Leah

[Blessed]

in reply to: untreated graves disease #1071332

May I just ask, why so many pills? Are they all for his graves or other health issues also? Men, I tell you, doesn’t it seem they think that they are immortal? It’s so hard to get my dad and husband to the doctor, they think they are "fine." I can’t tell you how long someone can go without being treated and not have any complications b/c I’m not a doctor, but I do know and have read on this site that smokers are at a higher risk for the eye issues. My suggestion would be that if he’s just not wanting to take the pills maybe RAI would be best for him b/c once that’s done then he will only be on one pill a day instead of several, of course unless his doctor has other things for him that we are unaware of. Also, if he does the RAI he really should quit the smoking, that can be bad too I’ve read. Of course I know how hard it is for someone to quit just like that especially if they are heavy smokers, but this is his health we are talking about here. I really hope that he will get the help he needs and start taking his meds, it is so important. I too have graves and am hyper right now and not on meds b/c I’m awaiting the alternate route, RAI or tapazole again, but I’ve been told that I really should be on something while I’m waiting and I’ve only been out of remission for 5 mths now. But I feel totally fine, if it were up to me and I wasn’t aware of all the things that could go wrong, I too probably wouldn’t take my meds. Thyroid storm, have you heard of this? He’s at risk if he doesn’t get treated. Read on here, there is lots of info to fill you in. Good luck sweetie, I hope he can get this taken care of. You are doing the right thing by taking action and getting informed, I hope he will listen to you, have him read some of these posts, then he’ll see for himself from people who have grave’s also.
Leah

[Blessed]

in reply to: Under the Knife – Finally… #1071338

Best of luck!!!!!

[Blessed]

in reply to: And so it begins… #1071550

Hi Girls,
Yes, thank you for your advice. I’m so frustrated with myself for not asking him that question about ATD while I’m waiting to make my decision. Have to wait til monday now but will call first thing for sure. Also, he did tell me that I will still carry the antibody that could still attack my eye muscles. I was aware of that. Kimberly, did you have RAI? Or are your trying for a remission? Just like to hear others stories, although, sometimes I’m not so sure that’s a good thing b/c it can really scare you and make you 2nd guess your doctor when you hear other people’s experiences. But like my husband said, the smart thing to do is probably listen to my doctor, he knows what’s best for ME. Everyone is different so while others are having a horrible time with their Graves, I’m fortunate enough to be on the other end of that. Just hope it really is as simple as he says once I’ve done the RAI, to regulate me again. I will definitly check out the site you suggested Rhonda, it may help lots also. I feel like I’ve got most of the info I need to make my decision, the only thing I’m not sure about is my levels. All I know is my TSH is 0 and that isn’t good but I have no idea what my T3 and T4 levels are and how they coincide with my TSH. AHHHHH!!!! So, I don’t understand what you mean when you talk about dumping my T4 levels Rhonda. I guess I better get a little more schooled in that department. I can’t tell you how much I appreciate everyone and their advice/input, it’s been enormously helpful. Thank you tons!!!!!! I’ll keep you all updated. Hope your dealing well with your RAI Rhonda!
Leah aka Blessed

[Blessed]

in reply to: And so it begins… #1071547

Yesterday was a long day for me and when I got home I wanted to hang out with my boys! ” title=”Very Happy” />
So, I was actually quite pleased with my doctor yesterday, but why did I have to go all the way back in to get that response from him??? Anyway, I told him that I’ve found this great website and have learned lots of information and so I had 18 questions wrote down to read off to him. Thanks to you all. He answered them all to my liking and even told me they were good questions. He still recommends RAI and I understand why a little better now. He’s a doctor and they want to cure if they can. He told me that if I had high blood pressure, he’d want to cure it not just treat it, same goes with my thyroid. He made me feel comfortable about the RAI but still not sure if that’s what I want to do. Currently my TSH is 0 and he gave me a few days to decide on RAI or hope for another remission again on Tapazole. I didn’t think to ask him the most important question until after I got home, should I be on an ATD while I’m waiting to make my decision? I have no idea, nor can he just how long I’ve been hyper again. In Jan my levels were borderline then in April as of last Tues I’m again hyper, so anywhere between Jan and now I could have been hyper and that’s close to 5 mths. ” title=”Confused” /> But I’m not really having any symptoms so I’m hoping that’s a good thing. And it’s the weekend so I can’t call until monday to ask him to write me a prescription. I was also concerned about leaving my thryoid in and it not working if it was more susceptible to cancer, he said no. He calmed my worries about being overweight with RAI, that as you all know already I may go hypo but won’t stay that way and can work out all I want and be fine b/c I’ll be regulated. Anywho, that’s the latest. Thank you for checking on me. I’ll really be thinking this weekend what I want to do. I was glad to know that there would be no side effects with synthroid if I decide to go that route b/c it’s identical to what the thyroid puts off now anyway.

[Blessed]

in reply to: And so it begins… #1071545

Oh how i wish i had the time to reply to each and everyone of you who have been so wonderful to give me some VERY helpful input. I’ve learned lots from just reading your replies and have added some questions to my tablet for my doctor visit tommorrow. I called the office today with more than 15 questions and she said I’ll just have to come back in to discuss it in person with the doctor since I had too many questions. I have to drive an hour to see him, why couldn’t he just give me a min. to process it and ask while I was just there on Tues. Anyway, thank you all for your help. I will post again tommorrow after my appointment. I’m am really hoping that I can do the same mamabear. I feel totally fine so maybe staying on the meds and hoping for another remission is the way to go. We will see, he made it sound like it’s just easier to treat with RAI, well for him or for me??????? DOCTORS!!!!!!!!
Check back in with me often if you all would please, you’ve already been super helpful.
Leah aka Blessed

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