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in reply to: Daughter Just Diagnosed #1071896

Thank you both so much for your words. I don’t even know where to turn for information really, aside from forums at this point, because our family doc has never dealt with it in someone so young. He sent us an e-mail not about Graves Disease, but about her thyroid. I know the Thyroid is the biggest part of this, but i am so confused. I’ve tried doing so research myself, but one web page says it can be fatal, the next says it’s not. One says her immune system is low so if she barely gets sick to take her to the doctor immediately, the next says shes normal. One says she might need hormone shots, the next still says she completely normal. I’m so confused, I apologize if I sound crazy going on like that, i really am not, it’s just the way I feel since I don’t know what to look for, or what the risks are.
So far, I took her to get her eyes checked because she’s always been able to scare people with them, by making them look like they are really huge and bulging. Eye Doc said that is normal for her, there are no issues with her eyes, but to get them checked routinely.
Our Family doc put her on Tapazole 5mg three times a day, Which scared me in itself because according to the pharmacy and online that is the adult dosage,, but both the pharmacy and I called the doc to verify and were told her TSI levels are so high it is needed and he came to this decision after consulting with other doctors.
With my daughter I’ve only gotten as far as telling her she has Graves disease, comforting her when she immediately started crying thinking she was going to die and explaining she will be taking meds for a very long time. She went to school and told her teacher she’s got Graves Disease and apparently he does too, so I think that helped calm her some because she seems calmer and hasn’t asked me a lot of questions yet (thankfully since i still don’t really get it).
I guess my biggest questions right now are 1. Is it fatal? 2. What are the major things I need to watch for? 3. Does she need a specialist?
Thanks for listening to me and for your help.

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