[Antoinetta]

in reply to: It’s 10 years ago #1062688

Hi all,
Guess what.. I suddenly after 4 weeks feel much better..the sun is shining again. I know that I still have to take some small steps but I am getting there.

I spoke to my doctor this afternoon and he is in agreement with my meds proposal, a slight up with only a 6.25 m. grams.

I thank you all for being there when it is soo needed.

HOPE YOU ALL FEEL BETER SOON.
Anne

[Antoinetta]

in reply to: It’s 10 years ago #1062686

I realy can do with some advice….I now experience a real slow pulse. Feel crap and nearly even down…everything seems to much. I have now bowels activity anymore and very cold hands…and voice is different.

I lowered my thyroid replacement about two weeks ago because I thought I was getting hyper again, although my blood results were in the correct ranges at that point….[sometimes I do not know how I feel anymore ” title=”Sad” />]

I now start to feel hypo and want to go back to the previous dose. Can all these changes kick in after two weeks? My endo is only availalble on the 28th…

Should I listen to my body? I am getting so confused from this not sleeping again etc.
Thanks for your support.
Anne

[Antoinetta]

in reply to: It’s 10 years ago #1062685

Hello you all,
thanks for being there again for me when I am sitting in front of my computer cryinging…you saved my live in 1999 when you were my only help in the world. I am living in Europe and 10 years ago there were no supports groups here.

I was treated 3 x with medication without successfrom about 1990 till 1998 for Graves. In 1999 we decided to for RAI. After this shock, the doctors send me home without thyroid replacement and I fell in the worse hypo ever…madness. I was 10 days in the hospital and after that 10 weeks in bed as a complete zombie. I lost over 20 kilograms of weight bacause my mind did not understand what eating is anymore. I did survive and in 2000 I had again the RAI. This time in Amsterdam done by the specialist who’s name was given to me by your team!!!! And all went well. I had a healthy baby boy in 2003 and was without any problems [1 medical vist a year] till recently.

Last October I found myself with a trombosis in my leg and was told to stop my anti-birth control pills as there may be a connection between these pills and the blood stolling. OK, I listened to this advice and have to take blood thinners till the end of April. However…………..nobody told me that my thyroid replacemetn had to go down tremendously when I stopped taking the birth control pills. I therfore continued every day my 175 grams of Thyrax and started to feel from strange to bad and worse. My GP told ne that I was probably getting into menopause and bla, bla.

I do not understand myself how I could have left it it going till January the 15th when I had to call the emergeny services in the middle of the night, crazy heart beating and all the rest. Worse than a natural hyper can ever be, a meds overdose.

I went for one week on a real low dose, then two weeks on a 150 micro grams, still too high and now 7 days on 137.12 micro grams. Today was the first day since months I feel like a human being again.

So all, please realize that all hormones you take are related one way or another.

I am not sure if my meds are the correct dose today but I must be close.

For all of you !!!!!! there is a light at the end of this hell. I am thinking about you all.

Hope this is helpfull and looking forward to reading you later today!!
Kindest regards,
Anne

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