Hello, I am new to this site but im glad I can look here and feel like I am not alone in this!! I have had graves disease for 4 years now. My old eye Dr talked about orbital decompression surgery but kept dragging it on.."next vist" then next visit comes and he’d say "next visit". It seems so hard to find an eye Dr that actually gets graves disease. In the last couple months my eyes have gotten much worse, and no help from my eye Dr. So I saw a different Dr and Im so glad I did!! He is great and finally is going to do something about my eyes. Beacuse my eyes are getting worse my endo decided to run some more tests on me and turns out I have an elevated TSI. My new eye Dr wants to hold off on the surgery because now he wants to get my TSI to normal limits and wants to try intravenous steroids. I now find myself willing to try anything because I dont know how much longer I can live with the protusion, dryness,pain, blurry vision, double vision…its really getting to me! My goal is to get the surgery because I feel that is the only way to get my eyes back to normal! has anyone tried the iv steroids before getting the surgery?? and does it seem to work? I have been on steroids and hate the side effects. Does the iv steroids have the same side effects as oral steroids.
any help is appriciated!! Thanks!
