[ANDI]

in reply to: Im new to the Graves Disease Foundation #1068805

Wow!!!!! I am just so happy with all the support and info I am getting from this group… My endo seems to think that if the attacks persist then we will discuss an anti-anxiety med. Right now she is just watching me since I am recently off the tapazol. I read your last response and you stated that you had RAI 4 weeks ago.. What was that like? I am sure if this doesn’t correct itself I will have to take that step next… My old endo tried to push me into that step and I wasn’t comfortable with the idea. My old endo said on one day I would have to go to the hospital and take a pill then return 4 hours later for a scan, then the next day take another pill (which I found out was actually an injection or IV in my arm which I am not crazy about at all) then go back for another scan then two days after that go take another pill to kill the thyroid. Now he also told me that that final day of taking the pill (the one that kills the thyroid) is when I needed to stay away from my 2 year old son for the day. Needless to say when I found out that I really had to stay away for everytime I took a pill or got the injection/IV it turned into being away from my son for 5 days.. So I cancelled the test.. Was your test like the one I described above? I have talked to alot of different people here in my hometown, Erie, Pa, and alot of them just had to take one pill and that was it. If I do end up having to do the RAI, I am strongly considering going to either Pittsgburgh Hospital or Cleveland Clinic. But right now I am trying to deal with going on vacation with my husband and little boy in our RV. He wants to get away for the weekend before summer runs out and I just keep thinking OMG what if I get a panic attack, I will be stuck/trapped wherever we are at. I am so afraid to do things because I immediately think OMG what if I get a panic attack. AAAAAAAAAAGGGGGGGGGGGHHHHHHHHHHH I am so frustrated right now about always thinking what if this; what if that………………………..I want it to stop so I can enjoy my life and family………… AS you can tell it has been a real frustrating day for me on the panic attack side.. On the graves side I have been doing great I just hope my labs I do in September show it has gone into remission…… Thanks again for listening to me vent… Take care everyone… Andi

[ANDI]

in reply to: Im new to the Graves Disease Foundation #1068802

Nancy, thank you for the great info…. My endo is based in Pittsburgh, Pa. which is 2 hours from where I live but she has an office in my hometown. That’s where I see the CRNP.. I am happy with my new CRNP and yes I was getting too much medication that is why she pulled me off the Tapazole but kept me on the Toporol.. I did get panic/anxiety attacks before I was diagonsed with Graves Disease but then my family doctor said they weren’t panic attacks they were caused by a thyroid rush… So needless to say I am really confused as to whether they are truly panic attacks or just thyroid rushes… Thanks again for the info and I will email you at the address provided for more materials.. I am so glad that I joined GDF it is nice to know that there are people like me out there going through this crazy condition…. ” title=”Smile” />

[ANDI]

in reply to: Im new to the Graves Disease Foundation #1068800

Thank you for your response and information. My nurse practitioner is using the endo as a consultant. On the topic of the anxiety attacks, I am on Toporol (beta-blocker) still, my CRNP said it would help with my "jitters" but I still get them. Are having panic/anxiety attacks normal for people with Graves Disease? I did consider talking to my family doctor about going meds for them but I feel like such a failure not being able to deal with them on my own. I am not a person who likes to go to doctors or take meds unless I am really really ill. I won’t even take a tylenol for a headache unless it is really really bad. I guess I have always been a believer of mind over matter. But when it comes to the attacks I just can’t seem to conquer them with mind over matter. The last camping trip I forced myself to go on, I was ok as long as I did alot of self talking and kept busy bu by the time night fell I just got this feeling of oh my god I have to go home, I want to go home and then I was pretty much in a panic attack. Another reason why I have been hestitating about meds is I don’t want to feel "out of it" or like a zombie. I just want my life back……. I want to go on trips with my family and not get an attack… I want to enjoy my life again and not worry about oh my god what if I get an attack or what if this and what if that……AAAAAAGGGGGGHHHHHH I am so frustrated right now (as if you couldn’t tell ” title=”Smile” /> )

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