[AmyG]

in reply to: RAI – my journey #1174292

Well…I’m back safely from my travels with only a few hiccups along the way. At the airport, a week post-RAI, I “whited” out the radiation/x-ray screening machine. They didn’t even look at the letter/card my doctor gave me. At The White House, I set off multiple dectors; but this time they cared to see my letter. Highly embarassing but as the saying goes “life doesn’t give you what you can’t handle.” The other airport travel went without trouble. Very strange.

I am actually curious to see what blood work levels will be on 10/25. I feel the same (not great, not horrible). Thank goodness for the beta-blockers as that’s helping with heart palpitations.

Wow, tomorrow will be 3 weeks post-RAI

[AmyG]

in reply to: Does RAI require you to be off from work?? #1174448

Hi Shakira –
I had treatment on Thursday @ 10:30am. I took the Friday off and was back to work on Monday. Thursday and Friday I stayed in my room mostly (with the occasional visit to the bathroom ) . By Sunday, I was sitting in the living room with my family. When I went back to work on Monday, I think I was more weirded out then I should have been; I stayed alone and avoided other coworker’s for a bit.

I think taking time off also helped me regroup and figure out how I was going to tell other people about my journey and treatment.

[AmyG]

in reply to: RAI – my journey #1174289

He said I’d have to weather the storm (no pun intended). I totally didn’t correlate hunger with being hyper but it makes sense – though I’m gaining weight not like before when I was losing it all. Hmph. What a roller coaster this is!

[AmyG]

in reply to: RAI – my journey #1174287

Hey Gatorgirly – yes, I have a little card that shows what I had done and I’m giving myself plenty of time at the airport (I’m one of those people who likes to be there 2 hours before so I don’t miss my flight – never missed a flight once!).

Today is now Day 6. Yesterday I had the worst body aches and a generalized anxious feeling. I took a Beta blocker and that seemed to help a bit. Other than being somewhat tired, eating nonstop, not working out and sounding hoarse, I feel eh.

One day at a time I suppose

[AmyG]

in reply to: New Grave’s Diagnosee #1174300

Hi WWWI 2 –
I was diagnosed in June (officially) and it has certainly been helpful reading others’ posts on this site. I totally understand the feeling of being scared when faced with your own body attacking itself. But hang in there. This group is amazing support; even if you want to vent that no one in your daily life understands what you are going through, someone on here will inevitably understand and have experienced the same.

[AmyG]

in reply to: RAI – my journey #1174285

Day 3 Update:
My parents came for moral support on day of. It was nice having them around to help make me some meals and do a little grocery shopping for me:) It’s now Day 3 and my throat is really killing me – but we just went from high humidity to NO humidity so maybe the weather change is playing some part in my throat’s dryness. I went shopping for a bit with my mom; she stood in line for me and I stood out of line. My back and legs are aching – gotta remember I’m not Wonder Woman (just yet!). I’ll be taking it easy from here on out as I’ll be flying across the country this coming Friday (poor timing but my trip was already booked before the allergic reactions hit and the sudden RAI treatment scheduled).

Side note: Thanks everyone for encouragement and words of support. It’s extremely comforting to be able to come on this site, vent, and see that others have felt exactly like you have – people w/o Grave’s just don’t get it.

[AmyG]

in reply to: Well, here goes! #1173516

AzGravesGuy – I’ve been following your story mainly because I’m having RAI on Thursday 9/13 and wanted first second-hand experience and because your no BS approach and positivity are refreshing!

I’m 30 yrs old but feel like my body is at least that of a 50 year old with Graves (no offense to the older posters, I just picked an age). I was allergic to the 2 medications out there so RAI is my last stop to HopeVille.

Keep on posting! If I’m not feeling too out of sorts, I’ll start my own thread so others can get as many perspectives of what to expect as possible.

[AmyG]

in reply to: UPPER EYELID SURGERY TODAY #1174177

Good luck to you today Shirley!

[AmyG]

in reply to: Terrible anxiety and very depressed #1174066

Hi Lilly –
The littlest things seem to set me off too and I’m extremely moody (my poor family ). Most of the time I have to actively tell myself it’s going to be OK and take some deep breaths. Do you do yoga? I was thinking of getting back into it once things settle around in my body.
And like karebear said: you’re not alone

[AmyG]

in reply to: Newly diagnosed and scared #1172649

@everyone Thanks for the words of encouragement. I started the methimazole yesterday. The only significant difference I see very early on is the less anxious feeling. It’s a small start to a large journey.

My doctor wants to see me in 6 weeks for liver panels & TSH/thyroid testing.

@gatorgirly – I live in San Diego. I’m definitely going to look into the conference since my costs will be low in comparison to out of towners.

You guys are the best…honestly.

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