[amy3820]

in reply to: YAY! It is working! #1182432

I was right. I am not hypo yet, but my doc started me on levo thyroxine so that I don’t have to dig out of a hypo hole. I am loving my doc.

[amy3820]

in reply to: YAY! It is working! #1182430

Thank you! I will make sure.

[amy3820]

in reply to: RAI on Thursday #1182285

I am much more thyroidy. The hummingbird heart is back. Luckily I have beta blockers. I am hoping to feel better between the 3-6 week mark. Hope you feel better soon!

[amy3820]

in reply to: RAI on Thursday #1182283

I was told 3 feet away for 2 days and no one to sleep in my room for 2 nights. I quarantined myself for 3, because I have 3 children. They told me that once the radiation had passed through my body it would only be in my thyroid. So no thyroid to thyroid contact. I have just played it safe, but I do have to go to class on Tuesday.
I am feeling very hyper right now, hopefully this won’t last too long. I have my first blood work 3 weeks out. I hope you are still doing well.

[amy3820]

in reply to: RAI on Thursday #1182281

I am holed up in the master bedroom. I have been scrapbooking, reading, and catching up on homework. My throat was sore yesterday, it is just a little sore today. They told me it would be because I have such a large goiter. I have been switching between reading romance novels and murder mysteries. How long are you stuck on quarantine? They told me 2 days, but we are doing 3 just in case.

Amy

[amy3820]

in reply to: RAI on Thursday #1182279

I just took it this morning! I feel pretty silly that I was so nervous, it was anti-climactic, Ms. Graves. I feel a bit relieved now that I am done. Are you stuck in your room today? That is the worst part, I can hear everyone downstairs, but I can’t be around them. How are you feeling?

[amy3820]

in reply to: RAI on Thursday #1182277

I am hyper again. I get the RAI done tomorrow morning. I am a little nervous, but glad that I am doing something. I will update tomorrow. I should have plenty of time since I am on quarantine .

[amy3820]

in reply to: RAI on Thursday #1182276

I think it just took a couple days to get used to the idea. I was scared, but geared up for the RAI. Now I am coming around to new opinions and possible surgery. I am thankful for an endocrinologist that is honest and is working with me. She seems stumped with the symptoms, but doesn’t write them off. She is awesome.

Kimberly, she does test FT3 and FT4. She says the TSH is not really reliable in someone with Graves. ChristinaDe, it is nice to know that someone else had weird symptoms. Sometimes I think I am going crazy or just a hypochondriac.

Thanks for the support guys! You have all made me a bit calmer. I will update after my blood work next week.

[amy3820]

in reply to: RAI on Thursday #1182273

Thanks guys! I am on 50mg of metoprolol 2x a day. It somewhat keeps my heart rate controlled.

Now my RAI has been cancelled. My blood work today is completely normal. My doctor thinks I maybe in remission, but my thyroid gland is still swelling. She is going to redo my blood work next week and then refer me to a surgeon if it is still normal.

Is it normal for the thyroid to continue to enlarge when the levels are normal. I am so confused about what is going on. She thinks that the normalization of my levels may have caused the side effects of the methimazole.

I am so frustrated. I finally felt like I was getting answers and now there are just more questions.

[amy3820]

in reply to: TT #1175483

Thank you guys for the support! I am so confused and worried right now. I know it annoys some on this board that I question my doctor, but I just want to know all my options before I make a decision. Fortunately for me, my doctor actually encouraged me to do this.
Vanillasky, Carito71, catstuart7, I also have been surprised at how many don’t know what Grave’s Disease is. Vanillasky I have a similar story. My TSH levels started to mess up in 2010 when my husband was deployed. It was our first winter in Alaska, too. It got better for a while in the summer of 2011 and went bad again in the winter 2011. In 2012 he deployed again and here we are again with very low TSH levels. I think stress plays a huge role in my GD. I am subclinical, but I have many of the symptoms and it is awful. I am hoping to treat early and avoid worse symptoms. My doctor likes the idea that I want to research everything and says that I have time to do so since we caught it at an early phase. I hope all of you find relief and I appreciate your input. Vanillasky I maybe messaging you about that surgeon. I am going to talk to my doctor about it.

[amy3820]

in reply to: Sub-clinical Hyperthyroidism #1175457

Thanks Bobbi and Kimberly. My doc told me to think about and research before I decided. I figured that the best way to do so would be a place that other people have had the treatments. I am leaning toward the RAI, but my husband is still skeptical about it. I teach, so I wouldn’t be able to have it done until Christmas or summer break. I can’t really go to another endo (live in Alaska ). I am going back to my cardiologist to make sure he agrees with the endo.
Bobbi did you have the RAI? My main concern is not the RAI, it is getting the correct meds after. My husband is in the Army and we move a lot. Some of the places we go do not have the best medical care and some of the docs will not listen. Is it a constant battle to find the correct dosage, or is it fairly constant after the first couple of years?

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