[aggets]

in reply to: Men With Graves’ and TED #1184004

snelsen wrote:

Great forum. I’m not a guy, but I sure do agree with Andy about his suggestion about closing one eye. I did that sooner than he did, and that is the ONLY reason I ended up with pretty good vision in that eye. I had an emergency decompression. It can happen very fast. Do see a neuro-opthalmologist to follow you closely if there is one in your area.
Shirley

Hi Shirley

Glad to hear you your vision is “pretty good”. That is really important to check that other eye. I can never remember my DR. recommending to check that non dominant eye but it seems that it should be discussed with every patient with TED. That could literally save someones sight.

Andy

[aggets]

in reply to: Men With Graves’ and TED #1184000

Hi James

My Graves Diease “Reactivated” as my Dr put it causing swelling in my eye and compressed the optic nerve. I had high doses of Steroids to reduce the inflammation but some permanent vision loss exists. Heres what happened. As I said before I have had Graves and TED for 15 years and also double vision when I look to the sides and down up is pretty good, Looking to the left is the worst. When I drive and need to look to the left I always close my left eye my right is dominant. So one day on my way to work I decided to close my right eye just for the heck of it and was shocked at how poor my vision was. So I got in to the Dr the next day and saw a retina specialists (all that was available to see that day) so long story short My appt was at 8:00 AM and I got home at 9:00 that evening. My vision has improved since then but overall it is quite poor in the left eye. Whats really hard to believe is with both eyes vision is good I guess working together the right must compensate for the left. And maybe a word of advice for anyone with similar problems who always closes the same eye due to double vision is to check that other every once in a while to make sure you are not losing your vision.

Andy

[aggets]

in reply to: Men With Graves’ and TED #1183997

Hi

In Andy and am a new member but not new to graves and TED. I was diagnosed with Graves in 2000 at the age of 31. My TED followed shortly there after. I had 2 wall decompression surgery in 2002. This past February I had a “Reactivation” as my Dr called it that required pulsed steroid infusion and unfortunately i have permanent vision loss in my left eye hoping the same thing doesn’t happen to my right eye. I was wondering if anyone who had decompression surgery has had problems with nasal congestion. I am basically always stuffed up and was wondering if anyone has had similar problems. So that’s my story.

Thanks Andy

[Author]

Posts