[AEBD1]

in reply to: TED and my wedding #1170174

Hey,

Thank you all for your support, encouragement and clarifications. I’ve taken note of them all, and am ready to meet with my opthamologist soon and discuss these possibilities.
I am hoping that steroids are not necessary… in fact, I’m hoping things don’t progress from where they are now. Alas, TED is a very sneaky thing… day at a time. Regardless, thanks for being there as each day does come.

All the best,

Ang

[AEBD1]

in reply to: Getting Through this.. #1170050

Hey supermom!

T3 affects metabolism and serotonin levels.

For me, when I had too much methamo, I didn’t experience side effects, because my doctor would take me down to a lower dose. I only felt it when I was off methamo and needed to get back on.

I’m not a huge expert, but can offer my sympathy and the little I do know.

You shouldn’t feel too differently, especially now that you’re changing the med dose.

It’s such a fluctuating things, so just act quickly on suggestions doctors make after blood-work as per usual

Ang

[AEBD1]

in reply to: TED and my wedding #1170171

Woah, gangstabear!
I feel like I just found a kindred spirit! haha. Thank you SO much for sharing your experiences. I’m totally copying and pasting your post and bringing it with me when I see my opthamologist again in February. I’ll see what he says about all of those things.
Congratulations on getting married! I hope the newlywed life is treating you very well.
I’m sure the pictures don’t look as bad, and photoshop is our friend.
Thanks again, for your words and sharing. I feel badly that you had go through TED while getting married, but at the same time, I’m thankful to hear I am not the only one (I still feel bad though!)

[AEBD1]

in reply to: TED and my wedding #1170166

Thank you for your encouragement, Shirley, and for writing a response to a lesser important question compared to those on this forum. As you know, when it’s happening to your life, the little things are big compared to the oustiders looking in. I appreciate your empathy and compassion.

My fiance has since revoked his previous suggestion to delay our wedding ceremony. He was very very stressed, and said things that he did not think through fully. I’m happy about that. haha.

At any rate, the wedding is on in June.

Thanks again.

[AEBD1]

in reply to: Just diagnosed with TED… SCARED #1170090

Hey,

Just an update, and perhaps some helpful information.
I miraculously got into see my opthamologist this past week. He is the leading doctor in Oculoplasty surgery in Eastern Ontario. Anyway, he is seeing me monthly, so I’m very happy about that.

I expected him only to talk to me for the first few months, so that was all normal.

Something that I did not expect was his offer to inject a Cortisone-based liquid into each eye area. I got the one eye injected that day, and I can already see the swelling around the eye go down (i.e. the heavy, dark bags under my eyes are disappearing). Although it is not a magical solution for the protruding eyes, it is nice to know there are small measures that can make life a little easier as I wait out the hot phase.

All the best.

A

[AEBD1]

in reply to: Just diagnosed with TED… SCARED #1170085

Hello and thank you Bobbi and Shirley.

I did type "TED" into the archive before posting, but I did not scroll down far enough, and for that, I apologize–for probably asking questions and saying things you have already written about.

I want to thank you both so much for taking the time to respond to me. I have felt very encouraged to hear your advice and personal insight. It is indeed so comforting to hear there are others who went through this and who are continuing to go through this.

My specialist is an Endocrinologist. She has worked with me throughout the 2.5 years that I have had Graves’ disease. She said she would try to get me in with an opthamologist, but she said it might be half a year before I can get an appointment.

I have heard over and over again (and confirmed by you both) that meeting regularly with an opthamologist is key to this process. In saying this, the 6+ month wait to see one is a bit scary. I actually booked an appointment this afternoon with a doctor to see if she can refer me to an opthamologist who works closer to me, and who can see me more quickly.

How often did you see your opthalomogist to look at and to see how much your eye is protruding, or how the swelling is affecting your optic nerve, etc.?

Right now, there is constant pain and pressure in both my eyes, but more so in my left eye. How long is this pain a constant? Does is eventually fluctuate, or did you experience constant pain?

I’ve also heard about people taping down their eyelids when they went to sleep. If/When the eye begins to protrude, causing the eyelid to be unable to close fully, what were some techniques that worked for you? What do corneal abrasions look like, and when you get them, should you just go to your family doctor for topical treatment?

I have asked a lot of questions, so I’ll stop there for now. Again, thank you, thank you, thank you! Your online presence makes miles of difference to me!!! ” title=”Smile” /> Thank you.

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