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  • acdogedoc
    Participant
    July 3, 2018 at 11:21 am
    Post count: 7
    in reply to: Allergic to PTU and Methimazole. #1185399

    I saw my endocrinologist and was set up with appt. for the surgeon who does all their thyroidectomies. He comes highly recommended. In the meantime I am allergic to methimazole and PTU. Dr. said no surgery until my thyroid levels are lower. I am currently on 50 mg Benadryl at bedtime and being weened off prednisone 20 mg daily. My endo. wants me to actually increase my methimazole to 30 mg daily to get my levels down as fast as possible so I can have surgery. What if I blow out in hives again? I can’t take PTU either.

    My current labs: TSH <0.007
    Free T4 3.85 (normal=0.9-1.80)
    Free T3 15.9 (normal=2.3-4.2)
    The surgeon’s assistant said thay have a lot of “tricks” to get the thyroid level down if I am allergic to meds. If they can’t then they mentioned RAI which I DO NOT want. Having RAI will require me to stay on meds I am already allergic too until my thyroid shrinks down and I heard RAI can cause thyroid storm.

    Any advise? Please keep fingers crossed I can tolerate meds until surgery!

    acdogedoc
    Participant
    July 1, 2018 at 7:26 pm
    Post count: 7
    in reply to: Allergic to PTU and Methimazole. #1185397

    Thank you both! I am back on 20 mg Methimazole but also still on prednisone and Benadryl. I see my endocrinologist tomorrow. Yes, I am allergic to both drugs. Since Methimazole worked better they decided to restart me on that. My concern is having a thyroidectomy. I do want this done but was told I needed to wait due to the iodine in the CT scan saturating my thyroid. It was 4 weeks ago though so I will see what my doc says. I also am worried because my heart rate is still high on Metoprolol 50 mg 3 times daily. It usually is around 90-100. Is this normal until I am regulated? Sorry, I am so scared. I am a veterinarian and I can’t even do surgery because of the hand tremors and my work had to be limited to 6 hours daily.

    Thank you,

    Angela

    acdogedoc
    Participant
    June 28, 2018 at 4:16 am
    Post count: 7
    in reply to: New to Graves and scared of PTU. #1185383

    Thank you emmtee! I have been a wreck from this diagnosis but trying to continue looking up!

    Angela

    acdogedoc
    Participant
    June 28, 2018 at 4:16 am
    Post count: 7
    in reply to: New to Graves and scared of PTU. #1185382

    Thank you emmtee! I have been a wreck from this diagnosis but trying to continue looking up!

    Angela

    acdogedoc
    Participant
    June 23, 2018 at 7:55 pm
    Post count: 7
    in reply to: New to Graves and scared of PTU. #1185379

    Thank you!

    I was really bummed because I was feeling so good on the methimazole and then severe, unbearable hives started.
    I understand that eye disease is also worse if you smoke. I am ashamed to admit that I am a smoker(4 to 5 daily) but I am working hard to quit! Down to 2 daily so far. I have mild dry eye but nothing else so far. Everyone on this page is such an inspiration and I am glad I found it.

    Angela

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