[msgraves]

#1060354

Just posting a little update, since it’s always helpful to me to see where other people are on their Graves’ journey and it’s always nice to get feedback.

It’s been three weeks since I last saw my endo and stopped taking methimazole. About a week after I stopped taking the medication I was feeling iffy and had my blood labs done. My endo didn’t find the results to be problematic and I was told to keep my next appointment.

I started feeling well again and was hopeful that things were looking up. Unfortunately, today I feel like I had a bit of a real set-back. I’ve begun to feel “thyroidy” in a way that I haven’t felt in a long time. I’d been feeling extra hyper and energetic from yesterday in the late afternoon until this morning. This was followed quickly by feeling anxious, down, and very ill-tempered. Now I’m just feeling disconnected, drained, and tired. As we Graves’ patients know, this is a process. However, I can’t help but feel disappointed and mad at myself.

I’ve decided against calling my endo again, since I don’t want to be the “girl who cried hyperthyroid.” My next appointment isn’t until the very end of April, which seems like a very long way off right now.

Best,

Ms. Graves

[sarawebberdurnell]

#1182134

Ever since my first appointment with my endo 8 months ago, I am that patient who cries hypo I talk to either her or her NP almost every week or every other week to give them updates on my symptoms. I’m ok with being that patient, especially now because I may not have to call so much. I had my thyroid removed on Monday and now just have to battle the synthroid and what symptoms pop up, but I know it will not compare to what I felt before. Best of luck to you, know you aren’t alone.

Sara

[Kimberly]

#1182135

Hello – I don’t recall if your doc did antibody testing prior to withdrawing the meds, but if antibody levels are still high, hyperthyroidism is likely to recur.

You know your body and you know something is off – if this continues, please *don’t* let yourself be miserable for another two months! If you are, in fact, heading hyper again, it’s much better to get back on a treatment regimen ASAP.

Personally, I would make the call!

[msgraves]

#1182136

Thank you both for the words of encouragement.

The tests that I had done before withdrawing from the meds were as follows:

TSH
T4, Total
T3 Uptake
T3 Total
T4, Free Calculated

I’m not sure if one of these is the antibodies. I never asked for antibody testing and I don’t remember my doctor mentioning it. I was told that there was a 50% chance that my thyroid would start working properly on its own.

If I continue feeling this way, I’ll call my doctor. I’m a little nervous that they’ll stop taking me seriously if I get more labs done and my levels are “in range,” but I don’t want to wait 10+ weeks without doing something.

Best,

Ms. Graves

[Kimberly]

#1182137

Hello – The antibody tests that are specific to Graves’ are TSI and TRAb.

I would definitely *not* wait another 10 weeks to get answers!

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